r/Celiac • • Mar 24 '23

Mod Post Clarification on Rule #2

356 Upvotes

Our Fellow Celiac Community Members,

We have seen a major uptick in posts describing symptoms and asking “does this sound like celiac? Should I get tested? Could the tests be wrong?” While these questions aren’t directly asking for a diagnosis, they do fall into the “seeking diagnosis” part of rule #2.

Celiac Disease has a myriad of different symptoms and related conditions; virtually everything could be celiac related. While we understand that this can be a life-changing diagnosis, we are not medical professionals and cannot give any advice other than this- if you wonder if you could have celiac, talk to a medical professional and get tested.

As always, if you have a question, please feel free to contact the mods. Thank you and be well!


r/Celiac • • Oct 31 '24

Mod Post Mod Note- A new Automod Addition

56 Upvotes

Hey Celiac subreddit! We’ve added a new automod that should help with the posts about wheat starch. Hopefully it decreases the amount of posts we get about it. If you notice any problems with the automod, please let me know!


r/Celiac • • 2h ago

Discussion never pan frying feel good foods potstickers again😭

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41 Upvotes

well i followed the instructions on the box… and ended up with half crispy slop🫩 safe to say i will be air frying them from now on! does anyone else have problems pan frying them or is it just my pan? i cooked with the recommended water and oil measurements so i’m not sure where i went wrong


r/Celiac • • 11h ago

News A new drug proven to be effective in Phase I/b: ANB033

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103 Upvotes

r/Celiac • • 4h ago

Question Favorite celiac-safe restaurants around Boston?

26 Upvotes

I'm heading to Boston this weekend. Which celiac-safe restaurants should I check out while I'm there? I don't have a lot of places to eat out near me, so it'd be fun to try something new.


r/Celiac • • 7h ago

Product Warning Celiac Cruise

36 Upvotes

I just want everyone to know that your cruise trip can become partially or entirely a bus trip, and that the cruise company's normal policy of offering partial refund or the option to reschedule for a different cruise does not apply to Celiac Cruises.


r/Celiac • • 5h ago

Product New holy grail gf item

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28 Upvotes

r/Celiac • • 6h ago

Discussion Do yall be shopping at Ross?

17 Upvotes

Why is Ross, Tj Max, and other stores similar honestly pretty good for buying gluten free food?? Even before i became celiac, i always noticed that they have a lot of GF/vegan foods at these stores. I have found so many gems while shopping for clothes lol


r/Celiac • • 11h ago

Rant My first trip abroad, so nervous & already never want to fly with United airlines again

31 Upvotes

Hi all. I was diagnosed with celiac 1 year ago. This year we wanted to go somewhere cool that we hadn’t been before we have a baby in the next few years, but I wanted to play it safe so we decided to go to Scotland (we’ve both been before). I’m from the U.S., so I believe it will probably be the same / easier to be safe in Scotland, also easier since everyone will speak English. I have a million places saved on my maps from FMGF with recent reviews from symptomatic celiacs.

I called United’s accessibility line to see if I could be cleared for an extra small bag (small cooler) to bring food because of my celiac and they said no. I usually bring carry ons only because I have had bad experiences with my luggage being lost, so I have very little room for even clothes & other necessary items for our 10 day trip abroad. The people I chatted with were so unhelpful, they even connected me to their manager who didn’t seem to know their policy & was rude to me.

I also called today to make sure my gluten free meal (which, btw, is called “gluten friendly” so I was going to play by ear wether I could actually eat it or not) would be on my flight. They said they can confirm it’s been “requested” but that there’s no way to tell if it will actually be on the flight. This was a different woman than I had talked to before and she was also extremely rude.

I was already stressed about the trip just because I get travel anxiety but this made me so upset. I cannot believe they can’t get something like this confirmed for an 8 HOUR FLIGHT. I don’t know if other airlines are better but it’s making me never want to fly United again.

I have some snacks & backpacking meals packed but Jesus Christ I cannot believe how awful this experience has been & I’m not even on the plane yet.

Edit: some folks seem to think I am saying I’m free balling and not bringing any food and just determined to be upset & hungry. This is my first trip abroad and I labeled this post as a rant. I’m just frustrated for all of us with how little support we have. It makes me think more broadly about all the stories where folks have to bring a wheelchair on a plane and it gets destroyed. My “struggle” is nowhere near that. This is all to say I am pretty aware of accessibility horror stories & I just want the best for everyone who has a medical need. I feel lucky every day celiac is fairly manageable. Thanks


r/Celiac • • 7h ago

Discussion More Protein

11 Upvotes

I’ve recently been diagnosed as a silent celiac and I’m really struggling with getting protein. I’m feeling extremely fatigued and exhausted literally all day now that I haven’t been eating gluten.

I am severely allergic to nuts so that’s not an option for me in regards to protein.

What all do you guys eat to get more protein?

Any advice welcome 😊


r/Celiac • • 11h ago

Discussion Cannabis Edibles

23 Upvotes

I regularly use cannabis edibles, and although I haven’t felt a reaction from potential gluten thus far, I am starting to worry about cross contamination. I mainly consume gummies and swallowable pills. I am in Canada, by the way, where everything is legal. Of course, I can make my own but I find the whole process tedious. Does anyone have suggestions for cannabis alternatives or product recommendations?


r/Celiac • • 5h ago

Question Gluten challenge for exam - painful!

7 Upvotes

Hello all,

I never considered celiac as a possible issue for me. I went Keto in 2017 to get healthy and had some excellent results. After a visit with a new gastro I have been asked to “not avoid gluten” so she can biopsy me for celiac. So…first I was YAY, I can eat -—… I still have 7 days before my prep day for the endoscopy/colonospy and really don’t want to eat one more item that is made with any grain. I am miserable and bloated.

Have any of you had to do a gluten challenge and found the things to eat that do not bloat you? Also, what good is it to label me celiac of if I choose not to eat things with gluten anyway?


r/Celiac • • 17m ago

Question Tips for dealing with mental health

• Upvotes

Im a 14 year old girl and got diagnosed in may. My best friend also has celiac, but we go to separate schools and don’t see each other very often. In my school district of 5,000 kids, I was the only kid who applied for celiac meals, and when I saw that I just started sobbing. Im going to try to find a therpisr but I’m also wondering how other people deal and what’s helped them


r/Celiac • • 1d ago

Discussion Going to a 3rd world country for a year (update, experiences and advice)

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155 Upvotes

hey celiac community! a while ago I posted this thread https://www.reddit.com/r/Celiac/s/JMaeQwWrpz

looking for advice, tips and my overall thought process in preparation of a long trip to a third world country. It was brought up a bunch of times that the actual country would be super helpful for context but I actually knew bringing up the country would be like the last thing I wanted to hear given my high anxiety at the time.

Anyway, I've returned from Yemen 🇾🇪as a foreigner and let me tell you, im so glad I tried.

firsly we sent a shipping container with gluten free cereals, pastas, flours, cake mixes and a bunch more stuff. It took 3 months to get to Oman, then wks to be brought up to Taiz but it came! Some things tastes like shipping container and I couldn't stomach it (especially the cereals) but my kids were so happy to see familiar foods!

I did find a way to get foods from Saudi Arabia (aka schar) driven to Yemen for a nominal fee but it was so worth it. by month three I stopped eating out of depression. My mouth was so bored.

Ok here's the important stuff. local farmers reuse large sacs from wheat, sugar, rice to carry the produce to the markets. There was a major possibility of cross contamination from anyone wasn't seeking out of crates. I had to buy spices as seeds and ground them myself at home. Factory sealed products were available in small sizes but they were overpriced and the city I was in was very scarce in stock. Standard ovens are available but not the norm. Most things are cooked in ovens without temp gauges. We had three ovens and none told how hot they were... That really throw me for a loop because I could have easily brought one or ten but I didn't know! We were also at a super high altitude, which made that kind of baking so hard for me to figure out. Coverters were available for very cheap, almost anywhere but the shipping company stole most of our closed box appliances lol including my bread maker. They also stole 60% of our meds but that's another issue.

I wanted to update just in case anyone found themselves in a similar situation. I wish you the best and I don't regret my trip at all, next time I'll be much more prepared and taking as much as I can in actually luggages because the container really was great in theory until you take into account theft, the length of time it's exposed to the smells and how long it takes to get to you.

since returning I've been trying to perfect stove top baking. pita on a pan, cake in a pan etc. it's been really fun actually and I'm happy I've become more flexible.


r/Celiac • • 4h ago

Question Advice Please

2 Upvotes

Hi, Im coming on here as a final result looking for any advice or comments, not just the basic ones I usually see. I tested positive in blood tests for celiac disease in February 2026, after losing my period which I have not got back still. I get very bloated and struggle with constipation, but these symptoms have not gone away since being on a GF diet. I finally have my endoscopy booked for the beginning of november but have not been eating gluten as the idea now scares me and makes me worried about the costipation/bloating it will cause. How much gluten do i need to eat? The doctor said to start eating it two weeks before? Also how likely is it that i really am celiac, as I ate gluten my whole life normally before this. I have had multiple different opinions about why i lost my period, at first they thought it was from low bmi/calorie intake, but i am sure I eat more than enough calories and have always had a low bmi due to my natural frame. I cant take the bloating i struggle with in my lower stomach anymore and need some advice for my endoscpy/how to get rid of bloating/ how to get my period back. i feel as though i have tried every supplement!


r/Celiac • • 50m ago

Discussion new diagnosis

• Upvotes

im a 23 year old woman and just found out i have celiac and i am literally devastated. i have abnormal celiac and have had stomach issues my whole life but honestly was used to it because i was told it was caused by anxiety when i was a teenager. i love food and croissants especially and have been super into baking like my whole life. i know there are a lot of gluten free subs but it’s just different. my friends have all been like “its just food its not a big deal” and “at least you will feel better”. (i do feel like that is probably easy to say if you aren’t the one being told this) i know i will feel better which is great but food is so important to me. and a lot of my friends don’t understand the severity of celiac. the fact that a tiny speck of flour can literally totally set back any healing of my body. like my doctor told me to get rid of any wooden spoons that i have used in dishes containing gluten and cutting boards, etc. i also work at a preschool and we do so many flour based activities like regular bread baking and making play dough with flour and even having kids play with flour on tables after making bread. i don’t want my boss to think i am difficult and causing problems by having to avoid these activities. I’m 23 and not eating gluten ever again is a long time! i want my families special danish Christmas cookies we make every year and my favorite cookies from levain in new york. or even just something as simple getting drunk a slice of pizza on a night out with my friends. the idea that i will never eat these things again is so devastating.

maybe i am just being dramatic and i am glad i know what is going on and that i will start to feel better. and i know there are so many gluten free options but it is just a huge life change. its just hard and weird and different and it feels super isolating right now. i guess i’m just wondering if anyone else felt the same way and how they dealt with it. especially as a person in my early 20s too if that makes sense


r/Celiac • • 11h ago

Question How Did You Discover You Have Celiac?

5 Upvotes

To preface, I don't know if I have celiac disease. I (21F) got my bloodwork done for the first time 2 months ago, and my platelets were very low (110k). Got another CBC and my platelets were lower (100k). So we did it one more time plus other tests and iron panels. My platelets went up to 137k, but my ferritin (iron) is 3ng/mL, which is REALLY low and kinda scary. I've known I had low iron for a very long time, but I didn't go to the doctor as a kid and my mom didn't take my concerns seriously. I have become numb to how fatigued I really am. My periods are very heavy, as I bleed through a super plus in two hours, so that could be an explanation. BUT I also know I had morning diarrhea frequently as a kid, it went away for a long time, and now it has recently come back. It's like twice a week, only in the morning, and the rest of the time I have normal bowel movements. I come from a family with anxiety disorders, so I wrote it off as that for a while. I also have consistently had canker sores since I was maybe 9 or so. I feel like all these symptoms add up to celiac, but I don't want to be certain.

My doctor has me doing iron supplements for the next 8 weeks, then we test my iron again to see if it changed. I just don't want to wait that long to start trying to rule out celiac. I'm seeing a gyno about my periods and am getting my blood tested soon for celiac.

I also want to include the symptoms I DO NOT have: irregular or missed periods, hair/skin/nail issues, headaches, migraines, tingling/numbness in hands and feet, unexplained weight loss, cramping, abdominal pain, nausea, constipation, pale skin, or bloating.


r/Celiac • • 7h ago

News Nanoparticle injection reprograms NK immune cells to fight cancer and autoimmune disorders

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2 Upvotes

Very very far away, but very interesting.

(Oh, and sorry for the ads on the page. They are TERRIBLE)


r/Celiac • • 23h ago

Discussion Gluten Nightmares

34 Upvotes

Does anyone else experience nightmares about being glutened? Most of mine involve me accidentally putting soy sauce on rice instead of tamari or being in a really fun situation with friends and forgetting to read a label and accidentally glutening myself. They often feel like those nightmares where you’re kind of awake or slightly conscious and it’s like anxiety poking through. Anyway about a year into my diagnosis and the fun doesn’t stop! 🥴😂


r/Celiac • • 15h ago

Question Nuts

6 Upvotes

Do you guys eat just whatever nuts from the store or only ones labeled gluten free? I’ve been diagnosed for about a year now and have not been very careful when it comes to nuts (or really most things that are naturally gluten free). I was wondering what the consensus is and if anyone knows exactly how much of a risk it is. I tend to make some calculated risks when it comes to things like this because being gluten free is hard enough.


r/Celiac • • 1h ago

Question Good butter?

• Upvotes

What are some good, safe butter brands you use? Still a learning celiac and trying to get a handle on things. I have schnucks, walmart n dierbergs to work with, if that helps. Possibly target. Unfortunately, the anxiety disorder hates new things so anything verifiably safe would be great


r/Celiac • • 12h ago

Question Restaurant cards for Japan and/or Korea

3 Upvotes

Hi all, off to Japan and Korea tomorrow and wondering if anyone has a good "I have celiac, these are the things that if I eat I ruin my entire family's vacation" card in Japanese and/or Korean. Thanks!


r/Celiac • • 9h ago

Question Recently diagnosed celiac. I love lentils for the health benefits. Where can I get reasonably priced lentils that are not going to cross contaminate me?

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1 Upvotes

r/Celiac • • 22h ago

Discussion GI Psychologists / GI therapy

11 Upvotes

My GI doctor referred me to a GI Psychologist to seek mental health support around my celiac diagnosis and all of the mental and social hurdles I’m struggling with. On the discovery call they told me it was $400 for the initial intake and then $300+ per 45 minute session after that. They recommend between 9-13 sessions and a lot of what they shared about the treatment plan sounded like something I’d really benefit from… changing your mind’s response to panic, social isolation, grief and hypnotherapy.

I’m wondering if anyone has had success with their GI psychologist? It just feels so expensive but I’m kind of at a loss and feel the average mental health care practitioner (therapist) just really doesn’t get it in the same way these gut-brain-emotion informed therapists seem to be.


r/Celiac • • 1d ago

Discussion Fiber

16 Upvotes

How do yall get your daily fiber since we don’t eat wheat anymore? what are your fav go to everyday or weekly staples? I feel like we are very protein heavy as a culture but not fiber heavy.