Hey friends. I'm a writer, and wrote a 4-page story about my own experience with neonatal loss. I don't want to post it here unless people would find it helpful, but if even a few of you would like to read it, I am very open to sharing.
Feel free to comment below, and I will edit this to add it on.
Trigger warning: It's exactly what you think it is.
Thank you all for your bravery and support.
ETA the story itself, below.
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11:11. Thatâs my synchronicity sign. Whenever I see it, itâs an indication that I am exactly where I should be. On September 25, 2026, I turned my phone on at exactly 11:11 and took a screenshot.
That morning, a âteamâ of doctors came into Room 325, looking exactly like a hospital drama. They introduced themselves by rankâintern, attending, resident, and leadâ and arranged themselves at various distances from the couch I was crying on. The one on the swivel chair, closest, said she was so sorry. The one sitting on the bed nodded in agreement. The one leaning on the wall behind her sighed, and the one standing by the I.V. line wore an expression I couldnât quite read.Â
The more important medical professional in the chair went on, saying that she heard we opted to induce this morning. She wanted us to know that she did not judge us for this decision. The confident stethoscope wearer on the bed agreed, and the leaning intern with a fresh haircut nodded, then shook his head, covering every possible empathetic base. The one in the middle with perfect posture remained unreadable.Â
I hadnât known this was a controversial choice, or much of a choice at all. But in this moment, as I evaluated the blank stare presented by the Resident, I wondered: Do you risk your life to fight to keep a baby inside of you, even when âinside of youâ is no longer a safe environment? Do you knight your 20-week-old âa fighterâ and send him, unarmed, into a losing battle? Are you supposed to leave the wreckage of this utter catastrophe saying, âI did every single thing I could to save himâ?
A week later, I would take every last measure to save my next-youngest son from the horrible reality of his brotherâs death, only to be reminded by his therapist, âhe can handle more than you think.â
âI think Iâm leaking fluid. Maybe a teaspoon or two,â was the first text I sent to my midwife, Ruth, my college housemate, my high school friend, my middle school Odyssey of the Mind teammate. She responded that it could just be a mild vaginal infection, but it made sense to come in and get checked out at the OB Emergency Department. She was already there.Â
Sweet Ruth, already trying to calm my anxieties, as she did with her gel pens in creatively folded notes passed in the high school hallways in between classes.Â
But I already knew. I knew, because I packed all of my medications and my notebook with name ideas. I knew, because I asked the kidsâ dad to come get them, and I told them to take their backpacks. I knew, because on the silent drive to the hospital, I felt the life-sustaining fluid draining from my body, steadily, an agonizing volume, and I knew we were 10 days away from viability.Â
A few hours later, I heard all of this out loud, definitively, from a very kind doctor with a very nice fleece that Grant tried to track down on the internet later (the fleece, not the doctor). She said that I had no amniotic fluid left. She said that he was 10 days from viability. And by confirming those two truths that I had held in my mind for the past two hours, she forecasted the next day of my life, and the only one of his. All of it was present in that moment, in the soft words from the soft-fleeced doctor, and for just one moment, I accepted its crushing magnitude before zooming back in and hearing her say, âIâll give you two a moment.âÂ
Zooming in was all I could do, then. Just one perfect toe at a time. One heartbeat at a time. One tiny capillary under translucent skin, one small movement of his mouth, one stroke of his forehead, one clip of the umbilical cord, one push, one breath, one contraction, one fist closed upon one rock taken from the shore of Lake Michigan.
I sent Grant five names. Talking about it felt too formidable a task, so I texted him from two feet away, on the hospital bed. Lewis, Soren, August, Edwin, Leo. Middle name Britt.Â
He texted me back: Louis, Soren, Edwin.
I texted him back: Edwin Britt. Your family and mine. We put down our phones and cried, then, the first sounds after a silent conversation.
They wrote his name on the whiteboard inside the room. Each nurse asked for his name when they entered. We wrote it on forms for his birth record, and his death record, and for the funeral home. We got used to seeing it, and saying it. Edwin. Edwin Britt.
Edwin Britt was born on September 25 at 5:19 PM. His weight went unmeasured and his length didnât matter, so they gave him straight to me, still attached. I tried to memorize his face, with the almond eyes and thin lips that matched my three other babies. I looked him over, all ten fingers and all ten toes, his round little head and knees to his chest and his long arms and beating heart and I loved every inch of him. He was perfect and he was madly and deeply mine. He was the only thing that existed: his body and the blue washcloth they wrapped him in.Â
There was a blue blanket and a blue striped hat that they gave him later, after they took his hand and footprints, as big as thumb and fingerprints. They put all of this in a little white box after they carried his body away. I sat in the lobby waiting for the car, just me in an empty lobby with empty arms holding that little white box.Â
(There was another little white box, given to us by the funeral home. The director, after telling me how much he admired my grandmother, told me that when he picked up babies from the hospital, he carried them out. Babies are meant to be carried, he said. He sat at the table where we planned my momâs funeral, and he gave us our sonâs ashes in a little white box.)
I walked out of the hospital carrying nothing. It had been just a day ago that I had walked into this building with my living son growing inside of my body, and now I retraced those steps, empty. Madly and deeply empty.Â
The emptiness had stayed. Itâs 11:11, and I donât feel at all that this is where I should be. This world, like my body, feels hollow and barren and cold. Might there be a world where we are together? Where we were both âfightersâ?
This was the first baby that I delivered vaginally and naturally. I welcomed the growing strength of the contractions because it meant I could finally do something productive, feel something besides my mental anguish, and withstand punishment for my apparent wrongdoing (a religious childhood at work). There was a perfect masochism to the moment, since I was in all other ways helpless, devastated, and dreading the death of my son. But right now, I could only feel the exquisite pain of the present; I could only deliver him into the world and nothing else. I never wanted it to end.Â
And then he was there, and I felt the most immense relief and deepest despair as the physical pain dissipated and I was flooded with love for this boy whose whole life was already beginning to end.Â
So I held him close. I breathed in and cried out. I felt, and then stopped feeling as time froze and then raced ahead. Grant and I passed him between us as we hit emotional capacity, soaking him in until we were drenched, drowning.
Then, at 8:30 PM, the nurses left, the lights dimmed, Grant collapsed, exhausted, and it was quiet, and it was just us.
I unwrapped you from your blanket and placed you on my skin, with every tiny perfect finger of your hand resting on my belly. I stroked your head, and looked into your face, and loved as much love into you as I could. I loved you as you lay perfectly still. I loved you as your skin went dark. I loved you as your body grew colder and colder. I loved you as you left, and after you were gone, and I always will.
Before we met him, and saw his face, and held his hand; the day before, when we got to the hospital, two nurses came in to draw blood. They were both young, talking about food, another co-worker, each otherâs annoying habits. The boy left, and as the girl lined up the vials and prepared the needle, she asked, âAre you excited?â I paused, honestly thinking through the coming events, seeing if there was anything I could say I was excited about so I could save her from embarrassment. I didnât know yet that giving birth would be one of the most incredible experiences I would ever have. I didnât know how beautiful it would be to witness Grant, fully becoming a father. I didnât know that the four hours we got to spend holding and loving our son alive would be the most tremendous gift. I couldnât think of anything to say.
Most of the messages I received in the aftermath of Edwinâs death fell somewhere along the lines of, âI donât know what to say, but I love you.â This felt perfect. Because I didnât need to be told anything at all, but I did need to know that I was loved. I needed to know that I was still loved when I ate exclusively cereal and took three naps a day. I needed to know it when I read every Reddit post titled âneonatal death at 20 weeksâ and Google searched âHow much time did you take off of work when your baby died?â I needed it when I cried at school pick-up, cried when I got the mail, cried when I saw anything beautiful, and at the farmerâs market. I wanted to know that I was loved when I spent the entire day in my back yard, staring at the trees, sincerely thinking and hoping that it might cure me. None of these people knew I was doing these things, but I accepted their love, greedily, and out of necessity, and I loved them back.Â
Ruth, my friend, came in and hugged me for a long time after the soft, fleeced doctor told us that if our son was born tonight, or tomorrow, he would die. The doctor had also told us that if somehow he was not born, his lungs and heart and brain would not develop correctly; that he would become deformed from the compression of the empty amniotic sac; that I could develop an infection, that he could develop an infection, and that we could both get sepsis. I was already having labor contractions. They asked us to make a choice, but I didnât see any choices. After the very long hug, I asked Ruth if my baby was suffering inside of me, right now. I couldnât stand the thought. She told me that she truly believed that as long as he was with me, he would feel safe. I canât say that I knew it, but I needed it to be true.Â