21F. For context, I got my first period when I was 10. They were initially regular but always extremely painful and heavy. As I got older, they became so irregular that I started going months without a period. I also started developing excessive facial and body hair and struggling with my weight.
When I was 18, I finally went to my GP because I was barely getting periods. They suspected PCOS, and my blood tests suggested it too. An ultrasound in April 2025 showed polycystic ovaries, but I've never really had a clear answer about my diagnosis for some reason.
In March 2025, I experienced some of the worst pelvic pain of my life. I was in so much pain that I became extremely pale, and my lips went grey. I'm not sure if this was the reason, but it happened after taking Provera to induce a period, which resulted in 10 days of bleeding and severe pain.
July 2026, my blood tests showed high testosterone, high insulin, very low SHBG and a TSH of 11.6. I was told I have hypothyroidism and started levothyroxine in September. No weird side effects so far, but it hasn't been long anyway.
At my latest GP appointment, I was told I don't have PCOS because my more recent ultrasound didn't show cysts, and that my absent periods are likely related to hypothyroidism and insulin resistance. I was advised to take levothyroxine and metformin and lose some weight to help regulate my periods.
I tried metformin at the end of September but had to stop after three days because I felt constantly nauseous and motion-sick. I can't work or study if I take it in the morning.
My last period was in December 2025, and I still haven't had one.
Today, I experienced another episode of absolutely horrible pelvic pain after a long time. It was constant, with pressure and stabbing pain across my lower abdomen and into my back. I was literally shaking from the pain before calling NHS 111. I really can't say what the reason was this time. Painkillers helped a little, but after taking them, my entire stomach area became sore for HOURS.
I explained everything to 111, but was advised to continue with painkillers and follow up with my GP because this is a recurring problem. I'm just scared of the fact that it's been so long since my last period and the whole uterus lining thickening situation.
Has anyone experienced anything similar? Especially the severe pelvic pain when you're not even on your period? Or having conflicting opinions about PCOS despite abnormal hormone results? Did you eventually find out what was causing it? I just really want to hear from people who've been through something similar because I'm exhausted and honestly don't know what to do anymore.
First post lol thanks for reading