To the oncology medical community:
Writing to voice my concern about caretaker & family support while a patient is on Lupron medication. There have been significant psychological impacts causing family strife & separation, abusive behavior, aggressive behavior towards others, as well as paranoid behaviors, poor decision making capabilities, extreme improper financial decisions, & communication issues. There are extreme & heightened personality issues. These symptoms are known by the medical community when a patient is on Lupron but there has been no notification to the patient or his family to beware. We were unaware & unprotected by these behaviors. We have feared for our safety & for others. Behavior is uncontrollable.
There may never be recovery from these behaviors. These symptoms are known by the medical community when a patient is on Lupron but there has been no notification to the patient or his family to beware. We were unaware & unprotected by these behaviors. We have feared for our safety & for others. Behavior is uncontrollable.
There may never be recovery from these behaviors. Families need to know this but someone is trying to shut this information down. I further believe this is the reason behind the trans gender violence. No one wants to talk about it. This medication is unsafe.

Workouts?

Newly diagnosed and every damn thread on here has tons of acronyms which might be fun for you but really suck for anyone new. GAGABF (Give a guy a break, folks.)

EDIT: found this helpful https://connect.mayoclinic.org/discussion/prostate-cancer-related-abbreviations-what-acronym-would-you-add/

I had a yearly routine PSA test and it went up from 2.4 to 3.7. I already had been diagnosed with an enlarged prostate.

Had to wait 3 months to get an appointment with a urologist. They had me do an isoPSA, Total PSA and Free PSA. DRE no lumps

IsoPSA 12.1 PSA 2.7 Cleveland Diagnostics
Free PSA 25.2% PSA 2.4 Quest

Have a meeting next week with the urologist.

My isoPSA indicates an increased likelihood of finding high-grade prostate cancer.

I’m guessing the next step will be a MRI to determine if a biopsy is required.

I guess it’s good to find the problem early, but if I didn’t have that one PSA spike I’d be fat dumb and happy till it spiked again.

This subreddit is wonderful with all the great posts. I’ve been reading people’s journeys trying to choose between surgery and radiation. Unfortunately there doesn’t seem to be one best answer. I never knew how many people suffer with prostate issues. Having an anonymous site to discuss it is great.

I’m recently diagnosed with Gleason 8 and exploring my options. I’m not 100% there but leaning toward RALP. My original urologist , Dr. Kozin is at Piedmont Hospital. I think he’s a great surgeon if I decide to go that route. I’m concerned about the staff and the hospital. It’s only him and one nurse along with a scheduler . When I’ve had questions it always takes a couple of days to get a response. How important is the team here.
I also met with Multi disciplinary team at Emory. I wasn’t really impressed with the surgeon Dr. Lorentz but like that radiation, medical and surgical oncology are all coordinated. I’m considering getting an appointment there with there top surgeon Dr. Pattaras.
I’m meeting next week with another radiation oncologist at Northside.
All this to ask is there anyone here who has any experience with either of these surgeons or would recommend any Atlanta surgeon or radiation oncologist?

Had RALP 4 months ago and urologist has me on 5mg daily Cialis. Bilateral nerve sparing was performed. Gleason 7 with cribriform pattern unfavorable intermediate was the diagnosis. Pre surgery I had some mild Ed issues and would take cialis only before sex. Now it is very difficult for me to get hard and maintaining an erection is near impossible. Still getting used to the dry orgasm and not sure if I ever will. My doctor says just give it time but I feel like i had some immediate improvement then plateau at a place that is not where I would like. Have not experimented with any other ED/penile recovery methods. Anyone else in a similar age range who has dealt with or is dealing with ED post op?

Had RALP in April 2025, gleason 9 with large cribform present and margin were really close but not over on left side and surgical margin on right side was positive. I had a PSA test every 3 months and everyone of them read <0.01 for the 1st year. Doctor moved the test to every 6 months and had my PSA today come back at 0.02, and has now registered on my graph that my chart keeps. To you guys is this an increase or a possible blip and should I be concerned.

Dr said nerves were spared and everything went well (vague, he reported to family, had 3 and I was first of the day) but I didn't see him. Follow up after removal of catheter (i catch the second weekend on day 10, fml).Just had a few questions from your experiences. For reference 44yo gleason 6, 5/12 cores high percentage and intermediate decipher. No spread.

About how long until you received post op pathology?

When do PSA tests come and what am I looking for? .01 or .001?

Did you have these symptoms and when did they subside?

Blood in urine.... Days/weeks?

Feel like I have to go #2 today but afraid to push in the slightest? Feel like im waiting for it to fall out. Have taken mirolax x2 thus far. Going as normal ok or slightest strain a no?

Had awful lower back pain yesterday and this morning. Has subsided. Was the only pain on dilodid. Sent me home day of with tylenol and ibuprofin. Now it's mostly gas or air pain that can suck, pain that travels to back and shoulders (stress?) and very little pain in lats (6 cuts).

Catheter is an annoyance, assuming it gets worse.

All in all not too bad day after.

TIA

Can someone post the proper name of the Squeeze App they recommended and maybe a picture of the icon? There seem to be so many...