I’m currently treating Bartonella with Rifampin (300mg twice daily) and Clarithromycin (500mg twice daily). My doctor wants me to add Tinidazole 500mg, pulsed 3 days on and 4 days off.
I’m honestly really scarsd to. I have POTS symptoms and still struggle with severe fatigue, weakness, and neurological symptoms. Some days I can barely get out of bed, so I’m scared adding another antibiotic will make things worse.
Has anyone been on this combination or had similar concerns before starting Tinidazole? How did you tolerate it? I’m scared

So I’ve been bed bound with what I thought was long COVID for the past 10 months, recently saw a LLMD and she suggested it could actually be lymes disease. I’m gonna have some blood tests done in a couple of weeks but she’s put me on minocycline in the lead up.

For the first week I was on 100mg a day which was fine, I felt a bit more tired but my headaches got a lot better. I then went up to 2 x 100mg a day evenly spaced, felt ok for the first 12 hours then started having big time fatigue, high heart rate, mild fever, and anxiety. I went back down to single dose for a day and the symptoms got better so I tried going back to double and they came back again.

Does this sound like a herxheimer reaction? And will the 1 x 100mg a day be sufficient to still impact the lymes?

Found a bullseye rash this morning that didn’t itch. Took a picture and sent it to my PCP who told me I have Lyme and prescribed an antibiotic for 14 days because I had symptoms I was not aware were caused by Lyme (headaches, night sweats, dizziness, nausea and joint pain).

Anything I should look out for?

I have a small rotator cuff partial tear and a pinched nerve in my back. How do I tell whether my pain is due to that or Lyme?

I got bit 3.5 months ago. Had severe acute symptoms, fever, head pressure, drenching night sweats, and the worst of which, extreme insomnia. That first week was 5 sleepless nights in a row. Landed me in the ER, had positive IgM Lyme test.

Because of the sweats and insomnia I got on Atovaquone and Azithromycin for 10 days, alongside Doxy for 6 weeks. Felt better for a few weeks until I hit a relapse off meds.

I’ve been back on them, Malarone, Azithromycin, and Doxy for 8 weeks. On week 7 now. Currently still have terrible insomnia and air hunger for a while now. Some nights I don’t sleep at all, even on Trazadone, Gabapentin, and Melatonin.

Decided to seek a LLMD, James Thatcher in Wisconsin. He’s ramping me up to take: Ivermectin, Plaquenil, Baikal Skullcap, Samento, Artemesinin, and Boluoke.

The Babesia Microti test just came back negative so now I’m super worried I have Odocoilei (Live in Wisconsin)

Does anyone have advice? What do you think of the new treatment protocol? My Dr does not have access to Tafenoquine and can test through Igenex but not T Labs.

I’ve already seen Dr. B in Ashford, CT and Dr. S in Bridgeport CT. Neither could help me. I need an LLMD who will put me on the actual recommended doses for these meds and not a lowered dose.

Open to anyone within 2 hours of central CT.