r/Celiac • u/IcyAppearance3428 • Aug 12 '26
Question Curious..what do you think triggered your celiac?
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u/Intestin_Dysfunction Celiac Aug 12 '26 edited Aug 12 '26
Severe traumatic brain injury after a steel beam fell off a door and hit the back of my head. 54 weeks of post concussion syndrome and a slew of horrible symptoms. Started getting sick not long after getting cleared from that. 8 months later, Celiac diagnosis.
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u/Gold-Working-1810 Aug 12 '26
Hey, I also developed extreme celiac symptoms shortly after a head injury.
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u/LT1ok Aug 12 '26
I also had a closed head injury plus severe stress. When I was like 11 or 12, I was taken to fight behind the school, there were a lot of people there, everyone saw me fall. After a few months of treating the injury, the blood vessels in my palms were already bursting and I was scratching quite badly. At the same time, my thyroid gland started to grow, I don't know if it's related. As a result, the thyroid gland was completely removed a year or two after the head injury. Unfortunately, I was never diagnosed with celiac disease. I lived with symptoms and misdiagnoses for many years. I'm 33 now, I've been on the diet for about 5 years, the symptoms have gone away. There are scars from constant scratching for years, though
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u/root730 Aug 12 '26
Being born... I was diagnosed at 1 or 2 years old.
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u/lesbiantolstoy Celiac Aug 12 '26
Same here! I wasn’t diagnosed that young, but I showed symptoms pretty much from birth.
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u/BoldBiBosmer Aug 12 '26
Same, I had a very traumatic birth, the placenta ruptured. I think this is what triggered it in my mum, we got ill at a similar rate despite me being 24 years younger.
It took until I was 17 to get diagnosed.
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u/DealoftheFox Aug 12 '26
Probably trauma from abuse
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Aug 12 '26
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u/ashernico88 Aug 12 '26
I was diagnosed with adhd a year after celiac. I went to psych over increased anxiety because buspar wasn’t helping. She mentioned adhd often being a comorbidity of celiac disease.
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u/ansellias Aug 12 '26
Stress! From college / grad school.
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u/Apokalupsis18 Aug 12 '26
Same! I blame a specific “weeding out” class sophomore year.
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u/milagra3311 Aug 12 '26
Same! 14 final exams at once while starting a new job (with family ties which put a ton more pressure on me).
What is funny is that my dad didn't believe me at first, and when all the family got tested he came back positive!
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u/painandpets Aug 12 '26
Same for me...stress from grad school. My sister? Stress from law school. My mom? Stress from cancer treatment.
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u/Hopeful_Economist_56 Aug 12 '26
Same! It all started with psoriasis during my university prep year due to stress. After that came antibody tests, gluten and lactose sensitivities, and eventually, celiac disease.
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u/DrDendrite747 Aug 12 '26
Covid-19
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u/RadiantGuide7 Aug 12 '26
Seconding COVID-19
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u/Adventurous-Crab3117 Aug 12 '26
Same…in my 40s.
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u/Hd3ssEpH Aug 12 '26
Ditto. Solidarity, fellow 40-something sufferer (and all other age groups, too, of course!)
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u/Tschanz Aug 12 '26 edited Aug 19 '26
Can I join the gang? Post COVID infection when I was 40... Unvaccinated. Meh.
Oh I have to add. I'm am vaccinated. I just got COVID before there were vaccines. That was pretty shit. I'm in no shape or form against vaccines. I got my shots later, when they were available.
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u/Hd3ssEpH Aug 12 '26
Welcome!
Refreshing to hear there's still normal, rational people with regards to this. A friend (very much not an idiot - just very misguided) is so certain it was the vaccine that triggered my coeliac that it compounded his anti-vax belief! Fingers in ears when I try to tell him I went a full year of normal health before getting my first infection, and was never the same after it... calls it a delayed reaction to the vaccine. Fuck's sake.
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u/Timely_Morning2784 Aug 12 '26
Pregnancy.
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u/Sensitive-Shoe-5460 Aug 12 '26
yes me too. to bad it took 2,5 year after pregnancy until I goy diagnosed. getting sicker and sicker. losing more and more weight. the gastroentologist had a wait list of more than 2 years. fast tracking people who where bleeding and has high risk of colon cancer and ignoring the rest. only when I asked my GP for a celiac blood test, after researching my weird symptoms, and testing positive, the Gastroenterologist could see me.
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u/inkedampgirl Aug 12 '26
A lady i knew kept having miscarriages and they could not work out why, then someone ordered a pcp for celiac and bingo, now she has 2 kids. 🫶🏻 Celiac is a real demon disease. 🤨
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u/billnyedaflyguy Aug 12 '26
Same deal here, suffered for over two years and felt like an awful loser of a mom. Always so tired that it interrupted my ability to do fun things with my kiddo. It triggered thyroid disease as well. Doctors found that very quickly but the celiac was a journey :/ I lost so much weight. I am so grateful that my body allowed me to continue breastfeeding even if it was at my own expense. I needed a win at that time so badly. ANY win.
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u/Ajskdjurj Aug 12 '26
I said same thing! I got pregnant in 2020 and had a hard birth 2021 I got diagnosed with lupus and 2024 was celiac.
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u/breadpilledwanderer Aug 12 '26
Bad mushroom trip 💀
I wish I was joking, but it altered my mental health and stress levels so badly that I really do think it was the trigger.
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u/Justdoingitagain Aug 12 '26
I have always been curious but afraid of shrooms for this exact reason. Interesting that it happened to you and had this effect. Thanks for sharing.
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Aug 12 '26
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u/Ent_Trip_Newer Aug 12 '26
Dec of 2019 my boss went to a large conference in Cali. Brought it back to farm.
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u/iionian Celiac Aug 12 '26
Covid in 2021 for me! Insane how I went from being a healthy person to sick and disabled with more than one autoimmune disorder
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u/april-oneill Aug 12 '26
Same for me and my dad. I started having symptoms after my infection in 2023, and his started after his infection in 2025. Both vaccinated but it got us eventually.
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u/adorablebob Aug 12 '26
I think that's what caused mine, too. I got covid, then not long after I found out I was iron deficient.
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u/ClumsyRaccoonPants Aug 12 '26
I had celiac well before that but also got Covid December 2019 from working on the strip in Vegas and dear god was that bad. I legit thought I was going to die. 😳
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Aug 12 '26
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u/ClumsyRaccoonPants Aug 12 '26
It really did hit so hard. I had a fever for about 10 days and would take bayer to get it down. I didn’t even have to time when to take it again because I could literally feel my fever rising. Asthma and Hashimotos, that’s so hard, I’m so sorry. Considering how sick that first strain was it doesn’t surprise me. :(
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u/ClimateProfessional Aug 12 '26
I got really really sick in 2020 with a non-Covid virus. I suspect West Nile. That's what triggered mine!
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u/Hd3ssEpH Aug 12 '26
Yo.
Mine started after the vaccines, however I went a good year after these before my first exposure to the virus and then BAM! Hit me harder than covid - or anything else I've had for that matter.
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u/antihero_84 Celiac/UC Aug 12 '26
Stress from working at the USPS during COVID. Likely responsible for my Ulcerative Colitis as well.
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u/Hopeful_Economist_56 Aug 12 '26
I also have psoriasis accompanying it. All autoimmune diseases are interconnected—get well soon!
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u/thoughtful-thorn Aug 12 '26
Genetics. It’s in our DNA. And then probably depression for me
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u/Hopeful_Economist_56 Aug 12 '26
So environmental factors like stress and gluten exposure acting on genetic predisposition are what awaken celiac disease.
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u/bananacow Aug 12 '26
Covid + perimenopause both hit me around the same time, and both can trigger latent autoimmune diseases, so probably one of those.
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u/Affectionate_Low3830 Celiac Aug 12 '26
Idk when it triggered, I just know I found out at 22 but I've had symptoms for over a decade before then. Also I have many cousins that are celiac as well as my mom, majority of them started getting problems in their 40s and 50s. I've been stressed out and had anxiety since I was a kid soooooo I'm gonna say stress lol
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u/bleepblopbloop100 Aug 12 '26
I feel like there might be a link between high levels of stress coming from puberty or perimenopause
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u/What___Do Celiac Aug 12 '26
Food poisoning from bad seafood. I went to the doctor when my stomach still wasn’t completely normal after 6 months. They initially thought it was H. Pylori, but the tests said otherwise. Went to my PCP and a gastroenterologist several times over the next 3 years for worsening symptoms until I finally got a Celiac diagnosis.
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u/bleepblopbloop100 Aug 12 '26
My doctors also thought H. Pylori! Started antibiotics and didn’t get better and the test came back negative , a few weeks/ maybe month later I was scheduled for an endoscopy
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u/What___Do Celiac Aug 12 '26
Oh man, I wish my endoscopy had happened that fast! My gastro wanted to do an endoscopy after the H. Pylori tests came back negative, but my insurance denied it. 🙃 3 years later, they almost denied it again, but my gastro fought back and got it pushed through literally the morning of the endoscopy. I had already said, screw it, I’ll pay out of pocket. Glad I didn’t have to! Even with insurance, I had to pay something like $3k out of pocket.
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u/HostileApostle420 Aug 12 '26
Yep, mine was food poisoning from a chicken kebab. Never been so ill.
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u/himalayanpinkplum Aug 12 '26
A bunch of different things. Epstein-Barr and chicken pox at 2 years old, Covid twice and a nasty URI as an adult, chronic low white blood cell count, and long term severe depression and anxiety. My immune system has been under some sort of stress my entire life. Never had any food intolerances. I had an iron stomach but that quickly changed when I turned 30 and got diagnosed after several months of illness.
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Aug 12 '26
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u/TNCoffeeRunner Aug 12 '26
ADHD and autism here too! Although I don’t think they contributed to my celiac. I was diagnosed with ADHD in 1997 and autism in 2021, I couldn’t imagine being diagnosed all at once like that 😩
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u/TNCoffeeRunner Aug 12 '26
Well it definitely explained things that I didn’t think were ADHD related 😅 I feel like in life I’m almost always wrong, but to finally receive that diagnosis and feel validated was amazing. I cried tears of relief and happiness.
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u/vthokieK Aug 12 '26
There is some research about celiac and adhd often working hand in hand. Makes total sense to me, given the gut/brain connection. 4 in my family have active celiac (one with just the gene) and all 5 are ADHD, 2-3 are AuDHD.
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u/lucifertangerine Aug 12 '26
I watched my dad die from cancer when I was 12 and I still have ptsd from it and I think the stress from that triggered it because a couple months after was when I had my first days long puking episode
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u/Immensely_Confused Aug 12 '26
I've had it as long as I can remember. Might've just always been that way, might've been from one of my numerous childhood illnesses.
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u/kaylashaffer Aug 12 '26
I think it was Covid. My sister and I were both diagnosed a few years apart, and we think our mom has it too, so genetics also!
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u/Regular-Truth-6405 Aug 12 '26
eating disorder :/
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u/winkyhead55 Aug 12 '26
I swear mine caused my eating disorder (arfid personally) and i thought it was just me the whole time but who wants to eat when it all makes you feel like shit anyways 😪
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u/CeliacScientist Aug 12 '26
Stress from starting college but I didn’t get diagnosed until the last semester of college lol
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u/DownrightDejected Aug 12 '26
I have had a bad stomach for as long as I can remember. Way back to when I was a kid and ALWAYS had pains in the stomach and always got sick from certain foods. It’s genetic though, no? I have a cousin who also has Celiac disease, and her son has it too.
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u/rocketpoweredcow Aug 12 '26
The stress from my ex-wife's emotional affair and the subsequent divorce.
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u/nickelstappen Aug 12 '26
i've had celiac since i was born and nobody thought to test me for it until i was 8... i remember thinking being constipated and in pain after every meal was normal...
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u/Cheibrodos Aug 12 '26 edited Aug 12 '26
Have one of the identified celiac genes, my mom does too.
I always had a weak stomach but it got 10 times worse after I got a stomach virus from eating some dodgy oysters. Thats when I started investigating and got diagnosed.
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u/cocoakrispiesdonut Aug 12 '26
Mono in college - I suddenly had mouth ulcers all the time and thought I had an STD. I was a virgin. 🤦🏻♀️
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u/PoochedEEggs Aug 12 '26
Stress from being laid off twice in a year and jumping from consultancy to contract with shitty insurance at best for another 2.
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u/cbfy3 Aug 12 '26
Abusive relationship, severe trauma started a chain of changes including crazy fast weight loss and over exhaustion, then endoscopy said Celiac
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u/lunar-soup Aug 12 '26
I was eating pure fried gluten (gluten flour and water plus seasonings) and a lot of gluten-based vegetarian foods in middle school / high school and all the way until college. Kept having health issues, and think that maybe too much exposure/consumption of it triggered something, along with the stress from my parents messy divorce and an abusive mom.
Guess all those combined were too much for my body to handle
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u/chillin_killin80 Aug 12 '26
I was in the hospital for 6 days with rhabdomyolysis, and I think the stress from that triggered it. I was never right after that until I got my celiac diagnosis two years later
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u/wheatdown Aug 12 '26
stress/trauma. mine came from being homeless when i was 18. i was diagnosed from a biopsy about 3 months after getting an apartment
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u/nabongie Aug 12 '26
i genuinely have no idea i can only think the stress of being 13-14 during covid
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u/SystemicAM Aug 12 '26
I remember some fucking heinous food poisoning when I was like 8 and that seems like the most likely culprit
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u/surfer808 Aug 12 '26
I’m genuinely curious, is there solid medical evidence that stress or COVID can actually trigger celiac? I thought celiac required a genetic predisposition and that we still don’t really know why it becomes active in some people but not others.
My guess it could have been dormant and cases like COVID triggered gastric problems which activated it?
I also wonder if people are confusing gluten intolerance with celiac?
I’m not doubting, just curious…
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u/Fancy-Sandwich7992 Aug 12 '26
Yeah, post viral autoimmunity is real, kind of following along with the concept of epigenetics. My celiac was apparently triggered by catching the regular old flu long before COVID existed, I wasn’t aware that could happen until it happened to me. There’s research out there on multiple viruses that are thought to trigger different autoimmune issues (EBV is recently thought to be a trigger of multiple sclerosis, for example, but more research is needed). Some are better researched than others, partially because some of the connections have been more recently made. Here’s just an example of some of what’s out there https://pmc.ncbi.nlm.nih.gov/articles/PMC10051805/#sec10-viruses-15-00782
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u/ln8r Aug 12 '26
Pretty sure it was food poisoning from Taco Bell. The irony of being unable to eat all the incredible Mexican food here because of Taco Bell. I can't even.
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u/Squigglyelf Celiac Aug 12 '26
Stress after my father was diagnosed and then quickly (within months) died from cancer.
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Aug 12 '26
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u/Lingerherewithme Aug 12 '26
My dad lives with me. He blames every medication given to him for diarrhea even though he went gluten free for 6 months a few years ago and not only did his digestion normalize, he stopped having to taking insulin for his diabetes! But it can’t be celiac 😳
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u/holohooper Aug 12 '26
i always knew something was wrong since i was 5 years old. looking in the mirror wondering why my stomach was so big. but the celiac crisis, vomiting, and hospital stays didn’t start until my mom passed away. i was so stressed my stomach felt hot and i thought to myself that this is the type of stress that makes you sick and i was unfortunately right
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u/mychemicalromances Aug 12 '26
developed a pretty bad eating disorder in my early twenties and lost an extremely substantial amount of weight in a very short period of time. (to anyone reading this who also struggles with an ed; please PLEASE seek treatment. this is just another reason to add to the endless list of reasons you should go about losing weight the healthy way.)
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u/cutandclear Aug 12 '26
Trauma and a subsequent eating disorder. That and/or swine flu when I was 8/9ish
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u/Commercial_Job_7451 Aug 12 '26
Mono.
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u/winkyhead55 Aug 12 '26
Mono is one of the main things that brought me down this super rough health path and in the end here I am with celiac disease :(
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u/celianfr Aug 12 '26
Initially I thought it was the onset of puberty (my hormones have always been out of whack), but I recently remembered I got shingles around that time. My doctor confirmed that was a lot more likely to be the trigger.
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u/stormIine Aug 12 '26
genuinely no idea but probably has something to do with my lifetime of anxiety :(
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u/Luna_Runs Aug 12 '26 edited Aug 12 '26
Hormone age related change. Also I truly believe humans are not designed to be consuming gluten, grains, sugar or anything of very little nutritional value. You will never find ancient cave drawings of humans eating gluten, grains or junk ultra processed foods. Only paintings of hunting for animals and protein being a source of survival. Our ancestors were hunters and gatherers. We are designed for that. That's is how we should be living and consuming. That is how we are meant to live and survive. The reason I now eat an ancestral keto/carnivore diet. No human should ever consume gluten, grains or high carb junk foods. My biggest regret of my life was ever consuming gluten in the first place. But lack of knowledge in nutrition has led me to celiac disease over the years. I'm just glad I'm now 100% symptoms free and keto/ carnivore has freed me from my suffering.
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u/electrickblues Coeliac Aug 12 '26
I think mine could have been covid, the flu or covid vax, massive stress, food poisoning from campylobacter infection, or all of them together!
For my Hashimoto’s my guess is that glandular fever was the spark and pregnancy was the kerosene.
In any case I have a very strong family history through at least 5 generations, the activation code in my family must be 123!
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u/Suspicious-Mud-7179 Aug 12 '26
I love this post! I always want to know what triggered it for people. It’s hard for me to say, because I’ve had the rashes on and off since I was a teenager. Actually my doctor back then connected it to a specific kind of pickle I was eating often, which I now know contains malt vinegar 💀
But I think what really triggered it to where I couldn’t ignore it, was stress. My sister went off the rails and deep into addiction in 2023. I got custody of her oldest son and had to fight with his abusive dad in court to keep him safe. I also have her two daughters every other week in the summer, and I think just the stress of trying to hold everyone together really set it off. Things are much better now that I know! But I’m only about 6 months into diagnosis.
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u/breakupwonton Aug 12 '26
I did something that ended up hurting someone I really love, and I believe the stress from the fallout lead to my developing celiac. I sometimes feel like it's my punishment for what I did.
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u/PieThat7304 Aug 12 '26
Diverticulitis and 2 rounds of antibiotics. Felt bloated ever since, diagnosed celiac 3 yrs later.
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u/spankleberry Aug 12 '26
I had a stomach bug right after I was weakened from some heavy antibiotics for... A toenail infection. The serious celiac symptoms started right after that. But once I got the diet under control, a lot of other longtime weird maladies disappeared within a year.
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u/Mrwanagethigh Aug 12 '26
Likely my Crohn's Disease, which was diagnosed a few months after my Celiac diagnosis when I only improved slightly from going GF and they actually tested me for the former after months of me asking them to do so. After getting treatments that put my Crohn's into remission I tried eating gluten again very briefly and brought the symptoms screaming back with a vengeance, which was enough for my doctor to conclude that I did have both without going through the full month long exposure.
Crohn's runs in my family, nearly killed both myself and my Dad in our early 20s, his brother has it to a less severe degree and my grandma's sister has it. I'm the only Celiac in the family and these things tend to go in pairs apparently so I assume the Crohn's triggered it. Doctor figures one or both of them had been active and doing serious damage for years before I started having noticeable symptoms due to how quickly I spiraled downhill and how severe the internal damage was, so seems reasonable years of severe Crohn's damage might've triggered it.
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u/yellowduckie_21 Aug 12 '26
I took Accutane as a teenager and my stomach was never the same after that. My stomach really started going downhill when I was in university, each year it got worse. I ended up being hospitalized a few times over it before finally getting answers.
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u/bleepblopbloop100 Aug 12 '26
Stress. In 5th grade, first period started and it was horrible to the point I had to see doctors for it. Probably a year or less later I was getting sick
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u/rosemarygin00 Aug 12 '26
Childhood trauma and eventually found myself in a very triggering relationship. Got diagnosed after a while but looking back, it was 100% at the beginning of that relationship.
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u/velvedire Aug 12 '26
Awful childcare situation when I was four. I strictly remember feeling so so stressed and dreading going back each day. My mother blames me getting vaccinated. My mother is the reason I didn't get diagnosed for nearly two decades though.
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u/Huntzor Aug 12 '26
I was definitely feeling somewhat symptomatic for a period of time in my 20’s; I thought “bread makes me bloated”. So I tried the whole 30 diet. Made it a few weeks in before I stopped cold turkey and went back to my normal diet. Not a great move, and I really wonder if it activated celiac for me.
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u/taiintedlove Aug 12 '26
I had a severe case of mono (bed bound for like 6 months), then my house burned down. Never felt quite the same!
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u/Dull-Tiger605 Aug 12 '26
I had suspected it from 2016 onwards, had the genetic tests and the scopes, negative for coeliac. Then, I had one awful year 2022. Had a sibling die, had to move house five times, got Covid twice, left an abusive relationship messily… got the scopes surgery again that year and was found to have coeliac finally… can’t really point my finger at one particular cause 😅😭
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u/kittyannkhaos Celiac Aug 12 '26
Stress from not having custody of my child at the time, supporting my mother financially, living with multiple undiagnosed and untreated psych conditions, and my friend ODing a week before my symptoms arose.
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u/Lingerherewithme Aug 12 '26
Major abdominal surgery at 12, grapefruit sized benign tumor, splenectomy, partial pancreas removal. I wasn’t diagnosed with celiac until 42 because all the digestive symptoms were expected after surgery.
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u/spartaxwarrior Aug 12 '26
I always had bad digestion, but I think it was probably around the time I got my gallbladder removed that my vitamins started plummeting (which itself was probably caused by a bcp side effect). So, trauma to my GI tract, I guess?
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u/IzzybearThebestdog Aug 12 '26
Always interesting to see this because I had absolutely nothing wrong with me besides celiac symptoms. Even at diagnosis they said it is usually triggered by something , but I was at a super lax community college, on summer break, not working and wasn’t sick. Just popped up.
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u/maxneddie Aug 12 '26
Chicken Pox. I was diagnosed at age 3 in 1978, but before I started with any odd symptoms both my sister and I got Chicken Pox in 1977 or so.
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u/dachshund9410 Aug 12 '26
I decided to become a principal in a middle school. That broke me, so I went back to teaching 6th grade. It's way better but I have celaics now and a passionate hate for all things admin.
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u/ZwistPariah Aug 12 '26
I have no idea. Stress probably? Is that possible.
All i know is that i spent two years in pain thinking it was normal at the time.
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u/SardineB4Creatine Celiac 30 years Aug 12 '26
Mmm idk. A lot of my family line suffers immediately from Alzheimer’s disease. I’m the first to be tested and diagnosed for celiacs. I’m almost certain most of my family members neglected celiacs. Everyone else has died due to specific celiac disease neglecting issues. Absolutely fascinating!!
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u/Samus9912 Aug 12 '26
Trauma from unstable home, parents breakup and lots of fighting when I was 10/11. Combined with lymes disease in childhood (read a paper that it can affect the gut) AND combined with too many antibiotics as a kid, which greatly impaired my gut microbiome.
My aunt has it too. She expressed it past 40 after chemotherapy.
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u/Substantial_Method76 Aug 12 '26
Eating disorder- no idea if there’s really a correlation. Always felt that way because symptoms started at the height of bulimia
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u/inkedampgirl Aug 12 '26
At 17 I had a surgery on my ear drum, then I was diagnosed with stage3 celiac at around 18. My gastroenterologist is positive that surgery triggered the immune response. Sister has the gene, but no celiac. Definitely trauma to body will do it, perhaps even pregnancy?
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u/FreakingBored123456 Aug 12 '26
Pretty sure I was born with it active, my mom likes to tell stories of feeding me pablem in the 70s and I would just have diarrhea running down my legs in my high chair. It didn't occur to her I might have a problem with what she was feeding me.
My oldest child was also born with it active which is how we ended up finding out I had celiac disease which they hadn't been able to figure out what was wrong with me and I felt like a hypochondriac with all these weird symptoms that they couldn't figure out and they just saying it was a female problem and sending me to an gynecologist because I was having severe cramping that would bring me to my knees quite literally. Of course it must be that horrible uterus! 🙄 Not once to they send me to a GI.
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u/heyfabe Aug 12 '26
Went through a break up, dealing with stress and addressing anxiety and depression issues I had at the time. Stress on my body as I was working out lots and losing a lot of weight too. The mental and physical fatigue played a part imo.
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u/big-tunaaa Aug 12 '26
The amount of people saying Covid is terrifying - you know it activated an autoimmune disease but most of you dont do anything to protect yourself from it 😭 mask up people for your own health I’m begging you!!!
Definitely normal childhood exposures that did it to me - diagnosed young and my uncle finding out he had it was the reason I did!
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u/Imtrish Aug 12 '26
How do you know that? I'm recently diagnosed and I have no idea when started. I assume that all my entire life but I don't know.
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u/RobotAnna1 Aug 12 '26
Moved to Europe.
All those people saying we can eat bread in Europe... nope! It triggered my genes.
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u/BookkeeperDapper4330 Aug 12 '26
Getting the hpv vaccine! Sounds crazy but I got it later than a lot of people, symptoms started very soon after.
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u/jrainey3047 Aug 12 '26
I was listening to gastro podcast, wish I could remember which one and give a citation but a gastroenterologist who specialized in Celiac Disease said something that stuck with me. She said “everyone I’ve seen with active Celiac have 3 things in common before diagnosis:”
1. Genetic predisposition to Celiac.
2. Exposure to gluten.
3. Dysbiosis or an unbalance in the gut. She gave a few examples of what could cause this. Like poor diet, virus like Epstein Barr, poor lifestyle choices like smoking or heavy drinking etc.
Anyways, this stuck with me and I think the combination of these 3 triggered my Celiac.
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u/AllianceZag Aug 13 '26
Pregnancy/postpartum/not sleeping for like two years. Looking back the symptoms were there for prob 15 years or so… they just got dialed way up to the point where it was debilitating.
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u/knottycams Celiac Aug 12 '26
Rape.
I know for a fact. I was able document and prove it to the point I was rated by the VA for it, which is difficult to do.
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u/LaLechuzaVerde Celiac Aug 12 '26
I’m not sure whether it was my divorce, or birth control pills. The divorce probably makes more sense but my acute symptoms that first had me start desperately seeking answers started within a week or two of starting birth control pills for the first time in my life. But… that was also less than 6 months after my divorce so… hard to say.
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