does anyone else feel like their asthma is gone all throughout the day, but then when you try to sleep you can’t breathe?

I've been on Fasenra for 2 years now and having terrible joint pain at the end of my 60 day cycle. I can barely walk, my ankles, knees, hips, and back are in so much pain. It's spreading to my hands now too. I feel like this basically the last week before my next shot, then for a few days after and it slowly dissipates until about the time to order my next shot. I had similar side effects with Nucala and Dupixent

Anyone out there relate?

Im been coughing aggressive this afternoon, and notice theres a metalic taste in my mouth and saw small amount of blood together with saliva on the tissue.

Ive been like this every time i have cough, after 4-5 days of coughing i expected a blood coming out.

NOTE: Xray always clear.

Anyone have same situation like me? what did u do? I feel like i always rupture something inside me lol.

I use the coupon for Trelegy and pay $0 with it currently. However, the coupon maxes out at $2,400 which will only get me through six months. I see there is another coupon that caps the price at $35. Am I able to use this second coupon after I used the other one. Can you only pick one or the other? Does anyone know more about how these programs work. Honestly, I’m just not trying to pay hundreds because I can’t. My insurance sucks(UHC) and I have a high deductible, even when it’s met their copay on name brand/ high end meds is still insane. Thank you for any info given!

This might sound like a dumb question but how do I know if my asthma is under control? Why I’m asking is because I originally was diagnosed based off of symptoms and my feno score (unaware of what the number was he just said it was high). He then prescribed me trellegy 200 and a neubilizer. It hasn’t help any. I’ve also had 2 courses of prednisone which has not helped any. 2 weeks after my feno test I went back for a pft. All my numbers were above predicted. The impression part said no obstruction, normal lung volumes, normal dlco. The problem is I’m still having symptoms. Even when I was in the waiting room waiting to be called back for the test I was having symptoms. During my test they did a bronchildator portion and I had no significant increase but yet I’m still having symptoms. I also have a home peak flow meter and it’s always good. I’m just confused if my asthma is under control or what. Sometimes I’m not even convinced it’s asthma bc no inhaler works and my breathing issues are primarily in my throat like a tight feeling in my throat. But he seemed pretty confident it was based off my high feno. I worry tho that my problem is asthma and it’s going uncontrolled. Unfortunately I won’t be able to ask my pulm any questions until I I go back which isn’t until October 29th. The issues also occur randomly throughout the day with absolutely no known triggers. Rescue inhalers are no help. I would say that my asthma is under control because of my pft results but I’m still having trouble. I often feel like there’s more than just asthma going on…

Doc said asthma and allergy plus acid reflux is quite common… starts around 40s… I went to a high altitude place where I suddenly had severe labored breathing with sinking heart/chest feeling and a very heavy weight on my chest… inhalers didn’t do much and it was so confusing.

Now I’m being told it might be acid reflux I’m on Pepcid 20mg twice a day for two weeks then just once daily for four months

I’m scared because this happening suddenly leaves me disabled and I have to drive around for work… this is scaring me tons I love long distance driving.. does this become debilitating?

Had my first asthma attack last Sunday. I didn‘t end up in hospital but someone called an ambulance because I could not breathe well. I seem to have cough variant asthma triggered by colds. I have already taken three weekdays off work, and wondering when the right time to go back is. I work in a high demand profession with late hours. I still have some cough, but I am constantly peeing my pants with coughing and am tired. Work is blowing up so I feel bad being off, but at the same time I feel like I need normal to take the stress of work again. Any advice based on personal experience!

I'm a 35M from Singapore who has been living with asthma since childhood. Earlier this year, I decided to try taking vitamin D3 at 3,000 IU daily, and I've been pleasantly surprised by the improvements I've experienced so far!

For as long as I can remember, I've struggled with the feeling of being unable to take a full, deep breath, as though I could never quite fill my lungs completely. I've also experienced occasional wheezing, especially when exercising.

I've now been taking vitamin D3 for over two months, and I've noticed a remarkable difference in how I feel. What's particularly interesting is that Singapore is currently experiencing a period of haze, which can aggravate asthma symptoms, yet I haven't experienced an asthma flare-up during this period. My breathing also feels much more comfortable, and I can take those deep, satisfying breaths that I've struggled with for years!

Another noticeable change is when it comes to running. I would usually take a puff of my rescue inhaler beforehand to help prevent wheezing. Recently, I've found that I can run without feeling the need to use it beforehand, and no I've not had any weight loss and improvement in my cardiovascular.

I'm genuinely happy with the changes I've noticed and wanted to share my experience in case it resonates with anyone else going through something similar.

That said, this is purely my personal experience. I can't say for certain that vitamin D3 is responsible for these improvements, and everyone's response may be different. 😊

Hello! I’m a 28 year old BF born, raised and living in Atlanta, GA. I’m asking for some advice and/or help about a recent problem I’ve been having. First, I’ll give you some context:

I come from a family of asthmatics. My dad (59BM) states that he’s a former asthmatic that has “grown out of it” with age. I don’t know the deep history there, but I’ve never seen him use an inhaler, take medication or use a nebulizer. My oldest brother (36BM) is what I refer to as a chronic asthmatic. He was practically born with it and had an extended stay at the hospital when he was born to rehabilitate his lungs. He uses a daily inhaler, and no other medication that I know of. I should add that we share the same mom, but different dads. My second oldest brother (30BM) is let’s say a semi-chronic asthmatic. He also uses a daily inhaler called Symbicort and also takes Montelukast daily for his asthma. His only flares up when he over exacerbates himself or when the air quality changes. My mom is not an asthmatic, but comes a long family history of asthmatics. My dad does not.

Now, on to me! I’ve recently had three separate asthma attacks. The first happened at work. My job is very sedentary. I simply sit at a desk and do data entry for 8 hours. I had been experiencing some slight chest pains the day of and the day before. However, I was also on my cycle. If you’re a woman, then you know that as you age you can develop new period symptoms. So I just thought I was experiencing a new period symptom and brushed the chest pains off. I took some Pamprin and my inhaler (as a safety measure) and started my work day. Like usual, I was sitting at my desk and suddenly it was very difficult for me to breathe. I was gasping for air and the room started spinning. My hands got real clammy and I was super hot. I slowed my breathing, took two more pumps of my inhaler and started to feel slightly better. My breathing was very slow and uncomfortable due to the chest pain and I was super lethargic. I just remember saying “I’m tired” because my coworkers kept asking. The paramedics arrived. They took my blood pressure and ran an EKG. Everything came back normal. I went home early that day and just slept for hours. The second attack wasn’t as bad and I think I stopped it before it could get worse. I simply took 3 pumps of my inhaler and just sat down. In that situation I wasn’t doing anything in particular, just in the house watching tv. The third and most recent (the one that scared me the most) happened two days ago. I woke up from my post work nap, and decided to start cooking some dinner. I remember putting rice and corn on the cob on and suddenly it was very very difficult for me to breathe. The last thing I remember is waking up in my apartment surrounded by EMS. They too ran an EKG and took my blood pressure, and everything came back normal. They stated that my blood pressure spiked but was slowly coming down. In the end, they stated that they think I suffered an anxiety attack that triggered my asthma. My mom stated that I passed out for about 2-3 minutes but I was still breathing.

Every single attack that has happened, the professionals say that I may have suffered from an anxiety attack that triggered my asthma. I would believe them only if I was anxious before the times of the attacks…which I wasn’t. This year alone has been anxiety provoking enough for me when it comes to my health. In August of this year after a CAT scan, MRI, and tons of tests I was finally diagnosed with idiopathic intracranial hypertension. I have been suffering from headaches and migraines for the past 8 years. IIH is when you have excessive spinal fluid buildup behind the eyes which causes cranial pressure which then causes headaches and migraines. There isn’t a direct cause to it, but it happens to women between the ages of 25-30 or something like that. After trying one medication and it not working, me & my neuro-ophthalmologist settled on Topiramate. It is working as my headaches and migraines have decreased significantly. I’ve had appointments with my psychologist, psychotherapist, primary care physician, AND a pulmonologist. Every test and blood draw has come back normal. I have also been taking 15mg of Lexapro since late October of last year. So I literally have not been nowhere NEAR as anxious, stressed or depressed as I was last year. So you can see why I’m a little skeptical about the whole anxiety attack provoking asthma attack thingy.

If you’ve made it this far, thank you! I’m just desperate at this point and trying to figure out what’s going with me. I have no more ideas or doctors in mind to see. Any advice, help, or suggestions would be greatly appreciated. Thanks 😌

i’ve been walking a lot more this year and it’s definitely helping my exercise included asthma, but i wanted to know if anyone has experienced it helping with normal, every day asthma too? mine hasn’t seemed to change that much, maybe i need to give it more time. or maybe more time a day walking?

i found this article in “respiratory research” on lotus health that says that they pooled 9 small trials with 418 adults who had stable asthma and most of the programs ran 3 months of regular aerobic exercise and most of the people said their asthma didn’t bother them as much day to day and their quality of life scores went up. (and obviously they had better stamina and whatnot). BUT the scores on the standard asthma control questionnaire and the number of symptom free days didn’t change by a clear amount. let me know if you want to see the article btw. i don’t know if im allowed to share a link here.

i’m also going to start roller blading regularly, so maybe i need something more dramatic like that to see a real change? does anyone have experience with this? tyyyyy

…and then denied all the claims for the meds that I’m supposed to use the nebulizer for. Who thought this through? 🥲

Honestly, I’m so mortified. If I knew it was a panic attack and never would’ve gone in. So sure that I was having rebound shortness of breath after completing steroid treatment. And then while I was in the hospital, I got the old feelings of doom, believing that this is it this is gonna end, and
i am gonna end up dying this way, cause no one’s gonna take it seriously enough.

It should be noted. I’ve been hitting the blue inhaler and the atrovent literally all day long because that was I was instructed to do a flareup. But the doctor came by and said oh you’re having a panic attack you’re not wheezing or anything, and your O2 hovering between 94 and 97. I just started crying. I was like, one of these days. This is how I’m gonna go out.

I was still upset, even after they gave me Ativan. So I drove to the next town over to find a Tim Hortons that was open late, just to calm myself down, with melancholy music playing.

I swear, from now on, I will not seeking any treatment till I become cyanotic.

City council has long sought to dismantle the citizens idling complaint program and to allow truck idling again in NYC, a leading cause of childhood asthma, for the sake of big business. Intro 561-A is their latest attempt. Please sign the petition and tell Speaker Menin that NYC deserves clean air!

Interesting article. For those who do not wish to read a medical publication, the gist is that fiber is fermented in the gut and short chained fatty acids are a byproduct of that fermentation. These short chained fatty acids enter the blood stream and help alleviate inflammatory responses in your lungs (like asthma).

I’ve had mild asthma since around age 9, I got covid again recently and it’s been very bad since then, I’ve gone from maybe 10 asthma attacks a year to one every day, sometimes twice a day, they gave me a nebulizer because the inhaler isn’t working very well since I can’t stop coughing during the asthma attacks. They also gave some cough medication and recommended a steam inhaler thingy, the combination of those things and using the nebulizer instead of the inhaler has helped, now I’m only having to use the medicine 3 times a week. I’m trying to get an appointment with an asthma doctor but my mom isn’t taking this seriously and my mom has made sure my dad can’t access my mychart, unfortunately my doctors don’t want to communicate in any form other than mychart.

(My dad is great, he’s trying his best, my mom just hates him so she’s doing stuff like this to try and get at him, I think she’s trying to make him feel like an unfit dad. Unfortunately I am being caught in the crossfire)

So I’ve had a hard time getting direct information from my doctors about this, I don’t know when to use my inhaler or nebulizer. Sometimes before an attack I’ll feel really bad, like severe chest pain, coughing, shortness of breath, dizziness. But this can last for up to an hour before I actually have an asthma attack, do I use the medication then or wait for the attack to happen? I’ve been waiting for the attack to happen because what if I’m wrong about the symptoms and use it for no reason. So do I use it when I feel bad or when the attack starts?

I also feel like I’m somehow lying about this? The doctors I’ve seen have been concerned about it and are trying to see what else can be done to manage symptoms. On the other hand my mom’s a nurse and she says my lungs sound completely fine like I don’t even have asthma. I believe the doctors over my mom but now I keep doubting myself, what if I’m just panicking and taking medication for no reason? Like what if I’m somehow faking it and I’m not realizing I’m faking it?

I’m sorry if this is jumbled or makes no sense, I’m 17 and this stuff is really freaking me out, I’ve never had to actually deal with my asthma before.

My (smaller than average) 8 month old has asthma and needs a daily nebulizer. The mask is huge on him and we can't find a strap that works to keep it on him. Any advice? Or ideas?

Edit: I still will be holding it, I know he can just knock it off (although he actually leaves it alone and freaks out a lot less if we just let him sit)

I started generic Symbicort (the 80mcg) about a week ago due to a mild flare up, because I have surgery in 12 days. It's helped a lot but I feel weird on it, especially after a night time dose (e.g., heart racing).

Should I continue through surgery at a lesser frequency? I took myself found to two puffs per day. I realize it's a maintenance inhaler but it still feels like overkill because my flare was brief and mild. I feel like I'm getting too much medicine for no reason, but I also want to be in good shape for surgery 🫠

Hey all,

I just started Nucala and I’m really curious to hear from other runners, particularly anyone who noticed improvements in their running pace or endurance after starting treatment.

A little background on me:

I have adult-onset asthma, generally moderate. I’ve never been hospitalized, but some years are definitely worse than others. I’ve had two nasal polyp surgeries and essentially have no sense of smell. I’m on Breo daily and have needed 2–4 short courses of prednisone per year for roughly the last 15 years. When I catch a respiratory bug, it feels like I can never shake it.

I’ve gone through cycles of getting in shape, falling off the wagon, and getting back into shape probably four times over the last 15 years.

But this time feels different.

About three years ago, I was running three 10Ks a week at around an 8:30/mile pace. Then life happened, I stopped running consistently, and gained about 30 pounds.

I’m working my way back now and have already lost 10 pounds, but unlike previous times, my running performance just isn’t coming back. I’m struggling to maintain a 14-minute mile and can barely finish a 5K without feeling completely gassed.

I know being out of shape and carrying extra weight are contributing factors, but I can’t help wondering how much of my limitation is actually uncontrolled airway inflammation.

So here’s what I’m really curious about:

What were your mile times or typical running pace before and after Nucala? Did you notice a meaningful improvement in endurance or your ability to push yourself? How long after starting treatment did you notice a difference? Did it feel like your lungs were finally keeping up with your legs?

I’m not expecting Nucala to magically make me fit again, but I’m hoping it might remove some of the respiratory limitations that seem to be holding me back.

Would love to hear actual before-and-after experiences, especially from anyone who was already trying to run regularly before starting treatment!

TLDR: Not having boundries and ignoring my body caused me to have my first asthma attack in two years. Im ok just pissed at myself for being like this.

I have been on the verge of burnout for like two months now. I am a honours student in film specializing in music but I have a BA in sound design as well. So this all started when I had to put my dog down I obviously was a mess for weeks after but during this I was still working and trying not to let anyone down.

While working on assignments and practicals Ive also been in post for my grad project. I stand in for sound designer because we struggled to find one to stay. Then go off to help out my grandma with her house, five hours away, do shopping moving boxes Gardening. I already feel sick, fatigued and brush it off.

Get back and straight back into class, started my tutor course. Has three assignments due a week. While I am co-producing a short project and trying my best with people who never answer their phones. By now its been three weeks of sore throats nothing major, then the dizziness kicks in. No big deal probably just lack of sleep. Brush it off because I cannot afford to be sick. Too much to do to little time.

Last weekend I am out. I get my ass handed to me by a cold or flu or curse whatever. Still I go to school on Monday with mask and sanitizer keeping away from everyone. Go to the doctor. Nothing major have some advil and were upping your anxiety meds and take the week off with special doctors note.

Today, everything apparently falls apart because I am booked off and apparently the project CANNOT happen without me. I spend my afternoon fighting fires. Stressed out but I pur my foot down, Finally.

Then no one answers no one tells me if the suggestions are working nothing. Get to nine i am having trouble breathing. I sit down thinking im just really stressed out. Ten rolls around still no replies. Breathing is getting harder to the point where I call my dad in tears. I havent had an asthma attack in years because I moved to a better climate started monitoring my diet doing everything "right". Luckily I have a rescue inhaler and it worked.

No sitting in the aftermath realizing all of this could be avoided had i taken better care of myself and let myself rest. Had I not been basically on call for two months straight.

I don't know if my asthma attack caused my panic attack or vice versa or you know infinite spiral of one causing the other. Either way im pissed I let myself get to this point.

For those who order their fluticasone inhalers from Canada or elsewhere, have you found a solution for ordering fluticasone with the new tariffs and import restrictions? Is there a better option than spending $200 at a US pharmacy now?