GODDDD THEYRE EVERYWHERE. Bed, pillow, carpet, i find flakes in the hallway you know how embarrassing that is that they’re dragging through the house??? UGH. Sometimes i have to shake my shirt off because my neck and dandruff flake and i work in food.

i’ll itch my hands or arms by the office desk and realize ive left a small pile of flakes on the floor and quickly get the broom or move it around with my foot so its not noticeable to my coworkers

I’ve been in the flaking healing stage for what seems like a year i’m so fed up!! god.

this is just a vent post! wishing everyone a blessed and easy going day <3

Seriously, I feel like asking the pediatric doctors to help figure out why my baby has extremely itchy skin is talking to the wall. They’re just throwing oils and steroids at us.

I ask for to check maybe it’s her liver not functioning well so toxins are circulating around her body causing flares, they say no.
I ask to check for blood test for nutrition deficiency they say no.
I ask for allergy testing (which I’m on fence because I know the risk to test so early) they say no.

I’m helpless, what can I do in Canada to test ??
I refuse to believe that just using steroids to “manage” eczema. My mom gut believes it’s something internal.

I’ve done an online gut test, but they’ve just given me to take smidge probiotic. That’s all??!
I used to respect western doctors but now….ugh…they can’t relate to the pain do they?

I’m 14m and I’m losing it man. Every time i see somebody move their arms easily i get SOOO jealous because i struggle to do that bc of my stupid dry skin. I feel trapped in it. Im worried that when I grow up and have kids they’ll inherit my eczema and have to suffer just like me. So i really just need to know. Is there any light at the end if the tunnel for me? Like did y’alls eczema get better around adulthood? Because rig now I have eczema literally all over my body and i’m scared to sleep and get out of bed and change my clothes and go outside.

I keep seeing conflicting info on Reta and having eczema. I’ve seen positive results from GLPs on conditions like psoriasis due to how much they reduce inflammation and because eczema is a very inflammatory condition, it would make me think it would have a positive impact if any.

But then I see others saying Reta causes severe skin sensitivity or even gave them eczema like symptoms, rashes, patches etc.

Anyone WITH eczema already ever try Reta? What was your experience?

Right now the only thing that helps with eczema is triamcinolone and NOTHING ELSE. Moisturizers and all just delay the inevitable—my skin basically not existing. I don’t do steroids every single day i go 3 days on 3 days off 3 days on 4 days off and then loop. But is that ok?

Just wanted to share my personal experience with Zudaifu.
I’m 28 years old now, and I’ve struggled with severe eczema since I was a child.
When I was 18, I started using Zudaifu on my entire body and face for about a month. And honestly, what happened next still amazes me.
My eczema completely cleared up, and I stayed almost eczema-free for the next 8 years.
During those years, I would occasionally get a small patch of eczema here and there. Whenever that happened, I would apply Zudaifu just once, and the patch would disappear again.
About two years ago, my eczema came back worse than ever.
I had countless sleepless nights because of the itching and discomfort. I went to doctors, tried light therapy, used prescribed medications (including steroids), had allergy tests done, cut out dairy and several other foods, and tried so many different things.
Nothing seemed to help.
A week ago, I decided to try Zudaifu again.
And here I am, just one week later, with my face completely healed and the eczema on my body improving every day.
Before using it again, I did a lot of research. I’m fully aware of the concerns about potentially undeclared steroids in Zudaifu, and I understand why people are cautious about it.
But I also can’t ignore my own experience. This is the one product that has given me relief when nothing else seemed to work, and I experienced almost eight years of clear skin after using it for just one month.
For the first time in a long time, I finally feel pretty again.
I can sleep peacefully. I can wear makeup again. I feel comfortable wearing perfume. I can look in the mirror and feel happy with what I see.
And most importantly, I’m no longer ashamed to go outside.
People who have struggled with severe eczema know how much it can affect your confidence, your sleep, your mental health, and your entire life.
I’m not saying Zudaifu is safe for everyone, and I’m not telling anyone to use it. I know there are concerns, and everyone should do their own research and make their own decisions.
But personally, I don’t want to give up on something that has made such a difference in my life.
This isn’t medical advice or a recommendation. It’s simply my story, and I wanted to share it. ❤️

I suffer from dyshidrotic eczema on my feet and when it gets too itchy i pop the blisters to relieve it. however this flare up is leading to a lot of the blisters to become infected. has anyone else suffered through this? what could be causing it?

This is kinda long so I appreciate anyone who might take the time to read this!

I’ve had eczema my whole life (mostly atopic dermatitis, some dyshidrotic eczema especially in high school). Environmental allergies: pretty much everything but horses and pine trees. Other allergies: penicillin, some nuts (mostly due to my severe birch allergy per my allergist), and oats. I’ve been really struggling lately. Normally I would go through a worse flare every year or so and I’d deal with it and it would ease up after a while, but it seems like as an adult (28y/o) it’s just gotten worse. I have been dealing with a flare for the past year and a half.

Treatments:
- Steroid shots: as a child when the flares got severe
- Medrol dose packs: occasionally was prescribed for flares as an adult
- Triamcinolone: very sparingly as I’m terrified of TSW
- Eucrisa: didn’t really work for me
- Opzelura: worked well for a while, the dermatologist I was seeing at the time gave me basically no information on it and while I should have done more research myself it kinda just stopped working after a while.
- Vtama: last year, kinda worked? But it wasn’t life changing.
- Mupirocin: for a recent infection
- Doxycycline: for a recent infection
- Zoyrve: currently on this medication and waiting for it to work.
- Impoyz: a 3 day course for acute inflammation
- I won’t get into every OTC thing but starting in September I started being more consistent in taking Vitamin D3+K2, omega 3s, and Zyrtec. I’ve now been on all daily for 5 weeks. Go back and forth usually between Zyrtec and Claritin for my usual allergies and Benadryl around cats and dogs or severe environmental stuff.

Last summer it got to where it was almost over my entire body. I had bleeding and was bruised all over from scratching. My SO would drive me around in the car and have me sit on my hands to distract me and keep from scratching uncontrollably. Sleeping was so difficult. I did allergy testing at my allergist, my dermatologist got referred to another dermatologist to talk about phototherapy, and did an elimination diet for almost two months where I broke out in whole body hives after eating oats. The information from my allergy testing was semi helpful but I wasn’t using anything that I testing positive to. The flare kinda calmed down after a while and it got to the point where I felt like I could live normally again. My skin didn’t look fantastic but it wasn’t spread over my whole body anymore.

I basically use the most plain skincare ever to help keep my skin calm but nothing really helps. I use Vanicream everything, some Cerave (not recently though as it’s been making irritation worse), and Vaseline.

Fast forward to June of this year, I’d had some flaring on my neck and face and the other usual spots (back of knees, elbows, hands) on and off in the spring but nothing terribly unusual. In May a spot on my chin started getting worse. I was doing all my usual things to help soothe and manage but it kept staying red and irritated with relief every once in a while. In June I thought I for sure had an infection over a weekend I was out of town but I was able to get a telehealth appointment and they prescribed some Mupirocin for a week. It seemed to help that spot some. During July things were okay but not great. I went to the beach and maybe my skin loves the sun bc it cleared up a lot. At the time I was also using a sample of Zoryve my derm had given me earlier in the year (unfortunately the sample was the 0.05 and not the 0.15 but I guess it was something). I was using that and it seemed to help some but then the end of July/beginning of August things just went downhill.

I get redness in my philtrum and the eczema on my chin progressively got worse and worse and opened up. It started as such a small spot (and now it’s about the size of a quarter or maybe a silver dollar on my chin). I did another elimination to see if maybe my body just needed a bit of a reset. I could never tell if it ever really got better at times or if it was just in my head. I wasn’t sleeping. I was doing anything and everything to try and stop the cycle of scratching. My SO would wake up and grab my hands while I slept because sometimes I would scratch so violently it would wake them up.

By September I was worried about infection again and came to terms with I just can’t live like this anymore and nothing is helping. I love my dermatologist but maybe you guys understand the hesitation of going back again and again when it feels like a lot of times there’s nothing they can do. My chin especially was crusting and weeping and getting worse and my whole body was getting worse as well so I went back to my derm and she put me on two weeks of doxycycline, a medrol dose back, Triamcinolone twice a day for my hands, elbows, and knees, and Zoryve (now the adult dose - 0.15) for my neck, eyelids, philtrum, and chin (once it healed enough to apply it - was about a week before the skin was intact enough). She told me to basically just use Vaseline and Vanicream moisturizer if I tolerate it and she said if I still had the mupirocin I could put that on my chin as well. I started the doxycycline, Triamcinolone, and Zoryve that night and the medrol dose pack the next morning. Even after just one night I could tell a huge difference in my itching. The next two weeks I experienced more relief than I had in months. I was sleeping soundly. I was so thankful.

Behind my knees has stayed flare free, my elbows and hands have either been clear or like 80-90% clear, my eyelid has been clear, however, my neck, above my lip, and that spot on my chin will not quit. I went back to my derm AGAIN last week because my face and neck (especially my chin) got SUPER inflamed and cracked and was bleeding again and I didn’t know what to do. He told me to use a very thin layer of impoyz (clobetasol propionate) on the spots on my face and neck once a day for three days and then switch back to the Zoryve. I did that - a thin layer on Thursday, Friday, and Saturday, and then switched back to Zoryve on Sunday. It worked fantastically- and even on all the other meds I’d had over the last month my face was clearer and less red than it’s been in a long, long time. However, starting yesterday redness and inflammation on my chin started coming back… I can’t use that impoyz again for a long while since it’s a steroid… whomp whomp :(

Called my derm asking about maybe trying something else that’s stronger or a different mechanism and then switch back to Zoryve once the deep skin barrier has had more time to heal and he basically said give the Zoryve more time… I started on most spots on my face September 9th and when my chin was intact enough to start it I only stopped on my chin for those 3 days I used the impoyz so it’s been a good 4 weeks I’ve been using it but I supposed it could take longer.

I am just so frustrated and tired and I don’t know what to do. I’ve considered phototherapy but it would be hard with my work schedule. I’m really hesitant to try dupixant since it hasn’t been on the market for long and I have turned the idea of trying it over and over but I am just not comfortable. I’d also be really worried about rebound flares. Allergy shots are so expensive and they’d probably make my eczema worse to start out anyway. The Zoryve has definitely helped some with the itching sensation which I’m very grateful for but the redness and swelling and such is still very present and with the worst of it being on my face right now I guess I’m just really impatient for something to work better.

I’m tired dawg.

I know eczema is so different for every person, and I am truly grateful that my really persistent patches of eczema aren’t covering my whole body or anything, but if anyone has any thoughts, advice, or just some hopeful stories I’d love to hear. Anyone think somehow fitting phototherapy in would be worth it? Anyone have any other recs?? Thanks for reading if you made it to the end!

My Derm has prescribed me Anzupgo after two weeks of Clobetozol treatment. My skin is almost clear(hand and fingers) but the light pigmentation is still there. Doc want me to use it everyday as maintenance. Since it has many side effects, I wanted to know the experience of other people.

Besides time, what products help you with hyperpigmentation on the face?

I do whole-body UVB phototherapy for eczema, which is worst on my eyelids. I’ve always kept my eyes closed during treatment but don’t wear goggles because I’m worried they’ll block treatment to my eyelids. I already have trouble seeing far away and wear glasses, so I’m not sure if my vision is getting worse or if it could be related to phototherapy. Has anyone else dealt with this? Should I be protecting my eyes another way?

My kid has been having eczema for 9 years and only the last 6 months I’ve realized it was because of the detergents. I thought after trying Tide gentle, seven generations, Arm and Harmer , and one more all made for sensitive skins , small and tiny amount +3 extra rinses were enough evidence for me to eliminate the detergent cause.

Turns out my washing machine is a high energy efficiency type meaning it doesn’t use a lot of water which always leaves soap on his clothes even after many extra rinses .

Since then, every time I do laundry, after the machine is done washing. I take all the clothes out and soak them in the sink with warm water and vinegar for an hour to get rid of the soap residue, then I put them back in the washing machine and rinse 3 extra rinses.

Kid eczema has 90% gone. The only places he has now is between his legs where he his pants rub against his skin more when he bikes. No eczema there in the summer when he wasn’t biking.

I hope this helps someone.

Hi everyone, I have been taking steroid (betnovate) for 4 weeks now twice a day and I am soon to start cutting it down. My doctor didnt give me any advice on how to do that so imma try 1 week of once a day then 1 week of once every other day. To be honest I am absolutely terrified to stop. I am so nervous that as soon as I stop the cream it will just come back. I had been in my last severe flare up for over a year and used steroid as a last resort. You probably know how it is, you use it and its like magic and you stop and its hell again.

If anything tho its worse cos I have experienced the last 3 weeks with my skin being relatively clear and not dry and I dont wanna go back to it being so terrible I just cant handle it anymore.

My skin being like it was makes me super depressed and people made comments on it every day.

I guess im just really nervous and maybe over thinking it cos I just wish my skin could stay like this but I know I have to stop the steroid before I do too much damage.

Do any of you have any experience slowing down steroid use after 4 to 5 weeks and how you found it and what advice you may have if it does return?

First time flying with eczema. Now that pretty much all airlines charge for checked bags, I decided to put my lotions and products for eczema in a carry-on. They had to remove everything and test every item. I missed my flight and had to redirect 4 hours later. I want to throw up.

Hi! My daughter will be back to school after this fall break Im worried about her eczema flare up. Especially in her arms and thighs. I’ve come across eczema sleeves and leggings. Are they worth it and helpful? And if yes, do you any recommendations on what brand or where you’ve bought them? Also, are bamboo better than cotton? Thank you so much!!

What do we think?

This is making me so angry because I don’t know what to do!!
My daughter developed a rash around the left side of her mouth down to her chin, it’s grown and it keeps flaring and then getting kinda better and then flaring again.

The doctor said it was eczema or dermatitis (sorry I’m completely new to this stuff)
And basically told me I could try hydrocortisone cream but she can’t lick it.. but obviously she will, she’s a toddler, so I explained that and she said there isn’t anything we can really do.

So my kid is supposed to have a giant red rash on her face from now on? The amount of parents from daycare spreading rumors saying it must be HERPES is getting me so damn upset.

Does anyone have ANY recommendations on what I can do for my toddler so that the rash isn’t so prominent at least? I’ve already switched detergents, sippy cups, soaps, etc. still hasn’t gone away.

this is a rant

I feel like I’m actually going insane. I’m 21 and have had eczema on my skin since birth. of course there’s been up and downs. but here’s the thing. ever since I started working at a paint department my eczema has spread to my fingers and now blisters and pops and good lord it hurts.

like. insanely hurts. and it doesn’t go away until I’m home and after taking care of it.

yes I have my cerave cream and that usually works really well but it never calms down and has only gotten bad since I started working this job.

i tried asking my doctor to go see a dermatologist and she just denied me. saying either to find a new job or move departments but I can’t do either of those.

she also said just eliminate all of the chemicals that could be causing it. but what the hell am I supposed to do if it’s the paint causing it?? I can’t just not touch anything involving my job.

i actually don’t even know what to do other than continue existing in pain. and I already do that enough with the eczema on my arms and legs…

I've switched entirely to protopic from eleuphrat because I wanted a non-steroidal option for my eczema. I can't get off it. I wean off a few days, it just comes back. It was the same with eleuphrat too. Eczema never goes away.

I've heard about dupixent but there are some people saying it's life changing, and others saying it ruined their lives. I don't want to flip the coin on this. Right now my eczema isn't so bad I can't leave the house, but I don't think I can keep going if it gets any worse.

I had a terrible summer because of eczema/ hives/ random skin reactions and had to consult for it. It was worse than anything I've experienced before...

Now we're entering the cold season and it's been a while I didn't have a reaction and I'm hoping for a decent break.

But every winter brings in another wave of eczema because it's so dry my skin cracks! I scratch it until it bleeds and have to cover it with so much lotion for a little bit of relief.

Before it was only winter, now it's summer and winter?

So I only get relief during spring and fall??? Fml

Other people get season related eczema?

For those living with psoriatic arthritis, what’s something you wish friends, family, coworkers, or even strangers understood better?