Hey Community 👋
looking for advice on which manual wheelchair to get
>>this section is explaining what's been going on in this process so far
I was recently measured for a custom manual. I expressed at every part of the process how i'll need a tilt-in-space model. My daily power chair (non-custom) reclines, but really even with that doesn't meet my needs because my brain needs an inversion at least a bit and the feet don't come up. (EASWE B10 model.)
My blood pooling is severe and my brain ends up without enough oxygen to feel and think well. I'm unable to tolerate leaving my bed for long because of this leaving me bedbound 23+hours a day. This is me with my full mattress on a slope with my legs and trunk elevated slightly.
Each time I communicated that I need a tilt-in-space, I was met with push back from the rep/ pt person. When I said I didn't know what model I wanted, he ended up reassuring me that a Tilite Z is the best option. I trusted he understood my needs and this would be an adequate option with the dump as low as possible and footplate high as possible. That plus a full back and head rest. He made it seem like we can angle the back rest sufficiently to meet my needs.
My concern comes from that I haven't seen anyone with a custom manual permanently leaned back and I'm not sure if it was, that that would match my needs. I imagine I'll need to be more upright to self propel and I prefer talking to people while upright because I feel I'm taken more seriously.
I can completely tolerate being in those 0 gravity lawn chair recliners for any amount of time. So, I'd like my wheelchair to mimic those angles, empowering me to not be stuck in bed so much.
Does what the PT ordered even have a chance of meeting my physical needs?
The other caveats are that it must be able to break down and fit into a sedan as well as it be a self-propel manual model because that's what the script is for.
The pt rep measuring guy made it sound like there are no tilt-in-space self push models that break down. I recently found out that he is wrong and want a chair that brings me some independence 💪
Needs:
-fit in a sedan
-for my knees to be higher than my hips
-neck support ( have a little bit of neck strength but can't hold it up for more than a couple minutes so if it's not held up by leaning on my hand while my arm in on an arm rest, it needs some help holding it up)
-for my heart to be as close to the same height as my knees for as long as possible (this will determine how long I'm able to be out of bed and I would like to not be bed bound as much as possible)
I've been able to find very minimal information online on manufacturer websites, so I'd really appreciate your expertise.
a couple tilt-in-space models I've found that I think may meet my needs:
Steller GLT: 34lbs
• 45° tilt
• self push
• electric tilt in space option
•(does this break down without tools? online doesn't give any info)
https://www.permobil.com/en-us/products/manual-wheelchairs/pdg-stellar-glt
Fuze T50: 44lbs
•50° tilt
•self push
•electric tilt in space option
•breaks down without tools for transport
https://www.permobil.com/en-us/products/manual-wheelchairs/pdg-fuze-t50
Does anyone know how much weight adding the electric tilt feature feature adds to these chairs?