I 20m am about to start chemo treatment (stage 2)in the next few weeks and I love my hair but I’m dreading losing it I love my hair so much. I’ve been thinking about cutting it the last few days. Ik at the end of the day it’s up to me but I want to hear some other inputs from others that have had it and if they did or didn’t.

I’ve seen some other subreddits and people there have told people to just do it cause it going to happen and you might as well do it on your own accord rather than when it happens.

I’m basically just looking to see if other have done this and what there thought process was for it.

Finished treatment 4 weeks ago for stage 3 dlbcl. Interim scan in Aug showed complete metabolic response deauville 1. Had recent night sweats and fatigue. How concerned should I be? Seeing Dr on Monday.

Hey my fellow lymphomies

Next week I will be at the hopsital foe a one night stay. I will get a CT staging scan and also a picc line. The day after we r I will get my third round of chemo.

I guess thats the reason I don't get a port. Maybe Because 6 rounds of POLA-R-CHP are planned. And so only 4 rounds are left now or because of my Factor V Leiden thrombophilia (Coagulation disorder).

I am not sure but I have some questions.

I love alone, can I manage to put on a protection for the shower alone?

Which protection thing is the best?

And do I have to go to the doctor every week to get my picc line flushed and cleaned ?

I want to do some sport exercises at home, can is till do that?

Will i feel it in the dau to day life or is my body abd mind getting used tk it ?

Thanks for your help

Recently diagnosed with NSCHL, but the Syncytial Variant. There is not much information on this variant, and I want to see if anyone else has experience with this variant. The doctor has never seen this variant, so that makes me a bit nervous, but plans to treat it with N-AVD.

Stage 4 DLBCL here just recovering from round 4 of Pola rchp

I had a mid treatment CT (not pet) scan that showed "encouraging" but partial response. I'm a bit gutted as I see a lot of people get full response from sometimes a couple of rounds. I'd had 3 at that point and got a partial response.

They haven't changed anything with regards the chemo plan so I guess they are thinking we're on the right track but did anyone else get a similar result in the interim scans? I have a slight complication in that I'm transformed NLPHL so that lymphoma might remain active I'm told (I've already been told not to expect a "clear" end PET due to the low grade NLPHL. So remission for me might be complicated.

I feel well outside the first week of the treatment cycles the bumps I could feel are gone. I'm sure we all feel a bit lost until that end scan eh?!

Has anyone travelled abroad for work while on brentuximab vedotin (BV)? I have 4 sessions before my autologous stem cell transplant, but I have a 2-week work opportunity abroad that I’m hoping to take after my infusion and before my transplant. Has anyone done something similar? Did your doctor allow it? Would love to hear your experiences!

Have already notified my care team but my nose will not stop running. I have mostly clear drainage. They have added to my antibiotics regimen but its been going on for like 2 or 3 weeks. I have my next round of pola r chp next week. Is this a normal side effect? Allergies, low immune system or something else? I have heard if you lose nose hair it can make your nose run. I have been taking all the 18 pills a day they prescribe me as well as taking plenty of precautions for my immune system. No other symptoms of cold, including normal temperature. I have been taking temp a tim es a day

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Got my pt scan early. Only after one n-avd session. My spleen is normal now but got some to big boys on my chest that are left now. Currently at Deauville 4

4.7 x 3.4 cm station 5 lymph node

2.9 x 1.7 cm station 3A lymph node

Finally no more b symptoms i feel somewhat normal but the war isn't over

Hi, I am 20 and did 4 cycles of ABVD for hodgkin lymphoma finishing August 2025 .I did fertility preservation prior to chemo, but only got 5 eggs frozen and they said it'll be a 20% chance of a birth with these. My periods continued throughout chemo.

Im now 14 months post chemo and got a blood test this week to check my fertility levels. My AMH was low for my age, at 10pmol/L. I am obviously nervous around whether I'll be able to have kids. Has anyone had any experience regarding this/ able to share any thing to help?