Long term lurker, first time poster in this sub.
I feeling pretty miserable and just want to rant I guess.
I've had IBS symptoms most of my life. I've tried so many things and had so many tests. All the antispasmodics, peppermint oils, low Fodmap, low fat working on my MH, exercise, areas reduction, part time working, loose clothing. Medical tests show no IBD, no coeliac, no h pylori. No structural abnormalities, no issues with gallbladder or kidney stones. No known food allergies. UK based/ healthcare system for context (free but limited compared to private healthcare).
I think I'm just wired wrong. I have IBS, ADHD and synaesthesia, and have experienced a range of MH issues over the years. I had cyclic vomiting syndrome as a child. The hardware seems fine but the software is not working well!
To make matters worse, my GP thinks I need to reduce my MH meds to help my IBS, recognising that they can both help IBS through reducing anxiety/OCD symptoms but have the side effect of abdominal discomfort and dysfunction. I know it's about finding balance but it feels like I just can't win.
I think the only things I haven't tried are:
- motility or functional tests (Inc SIBO, BAD, slow transit etc) but my GP says my referral wouldn't be accepted until I've tried adjusting my meds first and even then they might not
- TCAs but my GP says avoid if possible as they are a 'dirty' med type, which I kinda get
- hypnotherapy which I'd consider at this point
I've had terrible spells of very severe abdominal pain too in the past too, possibly abdominal migraines or pseudo or sub acute bowl obstruction (due to other clear tests).
Not looking for any medical advice. I guess just venting to people who get it helps in some way. I spend my days in constant discomfort, usually looking 6 months pregnant and either running to and from the toilet, or wondering why I can't go at all.
Food is a huge chore and a minefield I can't avoid battling with everyday. In some ways I kind of wish I just have one 'proper' illness. I get that for, say, people with coeliac that it's hard but vital to avoid gluten but at least it's just one trigger to avoid (maybe that's oversimplified, apologies if so). IBS plagues every accept of my life and there is no treatment or avoidance or anything that seems to help. The only time I've not really suffered from IBS was when I was pregnant (when I have Hyperemesis Gravidarum instead)!
Did not plan on such a long rant but if you go this far thank you!!!