Hi everyone! I'm back with another update on my never-ending PCOS bleeding situation. 🥲
For some background, I've been dealing with prolonged and extremely heavy bleeding for months. In September, my hemoglobin dropped to 5.0, and I was hospitalized and given 4 units of blood and 2 units of plasma. I also received IV iron afterward.
Because I have mild mitral valve regurgitation, my gynecologist prescribed Slynd (4 mg drospirenone) instead of an estrogen-containing birth control pill.
I've been taking Slynd for about 11 days now, and unfortunately, my bleeding has gotten significantly worse.
I'm passing large clots, sometimes almost the size of ping-pong balls and bigger. The bleeding fluctuates throughout the day, sometimes slowing down to spotting and then suddenly becoming heavy again.
I went to my gynecologist today. She examined me, said everything looked normal structurally, and suggested that I might just be having a period. She told me not to stop Slynd and to give it more time.
However, my hemoglobin has dropped from around 10 to 9.4, and I've ended up hospitalized again. I'm receiving treatment for the anemia, but I'm really concerned about the bleeding itself.
I also asked my doctor about tranexamic acid (TXA). He said it might be an option, but we'd need approval from cardiology first because of my heart valve condition.
My main questions are:
- Did Slynd initially make your bleeding significantly heavier before it eventually improved?
- If you experienced large blood clots while taking Slynd, how long did that phase last?
- Did your bleeding eventually stop completely, or did you continue having irregular bleeding?
- Has anyone with PCOS and prolonged bleeding actually had success with Slynd?
- Has anyone taken TXA alongside Slynd to manage heavy bleeding?
I know irregular bleeding is common during the first few months of hormonal birth control, but I'm struggling to understand whether this level of bleeding is something other people have experienced.
I'm following my doctors' instructions and staying on Slynd for now. I'm just hoping to hear some real experiences, especially from people who started it specifically to control prolonged PCOS-related bleeding rather than for contraception.
I'm so tired of bleeding. I genuinely just want to have a normal life again. 😭