does the stent usually get worse before it gets better? I had a stone removed yesterday through uretoscopy and a stent placed. I feel AWFUL. They offered me oxycodone but narcotics make me feel sick so I declined.

Tylenol, ibuprofen and toradol aren’t helping. I’m in constant pain. My abdomen is very swollen and painful and my legs feel swollen. Is this supposed to happen? I don’t have a fever but I’m feeling worse, not better. Still blood In urine intermittently and I’m drinking as much as I can stomach, I’m feeling nauseous most of the time.

I went to get a cat scan with contrast for my gallbladder. They found a 4mm Kidney Stone. The doctor did not prescribe me anything and I didn't think much of it. Today I finally realized that this stone is bigger than the one that landed me at the hospital a few years back.

Has anyone with a 4mm experience no pain? Is there a way to avoid getting sharp pain?

I just don't want to be at work, sitting at my cubical over 20 floors up, and then need an ambulance for the pain (before we thought my appendix burst, but it was a 3.5 mm kidney stone). Luckily my prior stone happened during the pandemic. I am currently hybrid and I am freaking out of it passing while I am at the office.

My other concern is that it is a holiday month where I usually go out to pumpkin patches, bar crawls etc. I don't want to halt my life, but I am genuinely concerned of severe screaming pain as before, but this time in a public setting.

The 4mm stone is currently sitting in my kidney. These things can start moving at any time, so I am desperate for any advise

I saw this procedure called CVAC and a dr close to me does it. Ive had laser lithotripsy 4 times. I currently have multiple stones in my kidney up to 8mm. Has anyone had this procedure done and how was your experience with it? Also how is the recovery compared to laser lithotripsy?

For a whole month or two I was going lazy on drinking water and I found out. First pain episode in my right kidney was almost one year ago, it was so painful and intense that I was on the ground lying down screaming, sweating and throwing up. This lasted for an hour and I remember me sleeping on the bathroom floor after that. I Woke up later with no pain just some weird itchy feeling on my penis tip for no long time. I did not go to the doctor and I just bought an ibuprofen pack just in case that deadly pain comes back. That pain I had was like someone is squeezing my guts very hard, pain was in my lower right abdomen. as my brother told me it’s just an IBS attack which is he used to get. I just increased my fluid intake just in case it’s a stone.

I had no symptoms at all for almost one year, until 2 months ago, august heat in my country is no joke. I got sweaty in a busy work day and bam! Similar pain again but this time in waves and not as bad as the first time but it was persistent for three days and peeing amount was low. I gave up and went to the doctor this time, done an ultrasound and the report said mild dilated right renal sinus and proximal part of right ureter.
Stone was not found so doctor suggested a CT scan which I couldn’t afford.

After 3 days the pain was gone on its own and I could pee normally, I knew the obstruction was relieved but this kept recurring every now and then for 2 months. In last stages the pain was relived when i believe the stone reached my bladder then for a couple of days felt pain when it was in my urethra each time I peed i felt pain in my penis tip in the last drops of my pee. Pee was Intermittent in that stage.

Today I peed normally and on the last drops i noticed the pee line twitched a little bit and if i did not look at the toilet I wouldn’t know that I did pass it.

I might measure the it later and update this. I hope you never experience the pain and keep drinking water guys!

Had my ureteroscopy with laser lithotripsy a couple hours ago.

Feel like I got roto-rootered with a drain snake, but the worst part by far is the stent. It hurts as much as the stones did!

At least I only have to keep it in for 5 days :-/

Since August 16, I have had a kidney stone. I went to the ER and was told a 7mm kidney stone would be easy to pass. Haven’t passed it and went to another hospital. No help there either. Went to a third hospital and finally got to get in with a urologist the week after. Also found out that not only do I have the obstructing 7mm kidney stone, but also a 1mm one right behind it. Was basically fighting to get in with one. Every time I called one of the urologists, either the appointments were way out or I had to wait at least 6 weeks for the referral to go through. I get to have the procedure done on October 28. It will be a ureteroscopy along with laser lithography and a stent being put in. What was it like for you? I never had a procedure like this done and would love some tips and hear about your experience with it.

I’ve become increasingly suicidal as the days pass because my life has just been taken over by this unbearable pain. I woke up every 10-15 minutes last night crying and dry heaving because the pain was so bad. I don’t know how much longer I can do this for.

Hi guys, just had a question. From the posts I’ve been seeing it seems like the mental build up to removing a stent with a string is the true battle. I’m going to do it tomorrow, according to my urologist instructions. Any tips? I’m going to do it in the shower. My mom’s like “just go for it”! I’m like ok that’s easy for you to say lmao.

Hey guys, I have passed few stones but last one was maybe 6-7 years back.

so i got ultrasound done a month back. I wasn't having any symptom but I went for a random check. Told its a 5mm stone in right kidney

Now i started jogging since a week - i normally just walk. Since yesterday i feel a sensation for a few seconds , near kidney area ,ppl who have had a stone pain know it. I am wishing its something else but very scared for the kind of pain that comes.

Could jogging cause stone to move?

Previous episodes I always felt the long car drive on bad country roads maybe causing stone to move as well. Anyone relates to it?

How do you manage anxiety of pain?

I got these meds by my bed side

1. Diclofenac

2. Drotavarine

3. Tramadol

Which of these you take and do they really help?

I have come to believe ER is the only solution.

I posted a few weeks ago: https://www.reddit.com/r/KidneyStones/s/YKGUKYjzB1

My CT Urogram came back and they found a 4mm stone in my left kidney, but radiologist and urologist said that specific stone isn’t the likely cause of my gross hematuria.

My last gross hematuria episode was 8/31, but “relapsed” and had blood again this morning. Sent to urologist via portal.

I do have cystoscopy scheduled for November to scope my bladder.

On top of all this, they did find Retroperitoneal/periportal adenopathy and I have to go get testicular ultrasound to rule out malignancy of my testicles.

So, I have 2 different unknown things going on:

1. Why is there blood in my urine if uro & radiologist said the stone they see is unlikely to cause the bleeding?

2. Why are my abdominal lymph nodes swollen?

I imagine the cystoscopy will hopefully rule out any bladder malignancies but I’m getting worried.

Has anyone else dealt with incidental findings on their CT Urogram like this?

TLDR: My autistic nephew has been diagnosed with cystinuria and looking for snack and meal suggestions, and general advice.

My nephew is 14yo and non-verbal autistic. He has recently been diagnosed with cystinuria after many kidney stones. Trying to alter his diet is going to be a huge undertaking and I am trying to help my SIL and MIL. My SIL is a single mom working full time and needs a lot of support. Unfortunately my nephew is very particular about food, and currently all of his favorites are on the no-go list. Any prepackaged snacks or meals would be greatly appreciated, but open to recipes that I could meal prep and freeze as well.

Also just any general advice is welcome as I try to help them navigate this. As you can imagine they have their hands full already and asked if I could do some research, and reddit was so helpful when I was diagnosed with IC.

TYIA

2mm bastard! What can I expect for the rest of my life now?

I have two stones, one in each kidney. One is about 8mm while the other is 5mm. This is like my third time this year getting kidney stones but this is the first time that my doctor told me I needed to get into procedure ASAP.

I’ve read here that the stents can be painful/uncomfortable and I’m well prepared for that. Is there anything that you wish you were told before going into the procedure that you weren’t? I’m super anxious 😬

Thank you!!

Hey guys, I know alot of people have already talked about this, but I still wanna know if there is any way around it. I had a 2.4 cm Stone, got PCNL on 12th October

The time in the hospital was painful from the catheter, I just wanted to remove the Cather. After it was removed I felt relieved. Went to pee, and thats when I realized they had put a stent in me. I asked the nurse before and he said no stent but there was :(

I got discharged yesterday, and I'm going crazy, the sensation on your dik feels like you wanna pee rn + the intense pain when you pee. I asked my doctor for tamsulosin. The pain and the irritation is killing me, idk what to do. Anyone that found a way around or something that eased the pain, please let me know.

sorry moderators. I cant find the flair for NSFW

i had a ct in february, another in may, another in july, and having a 4th on monday. im a 22 year old female. the doctor says he “hesitates” giving me ct’s because of the radiation, but is this really that bad? im scared now that i will get cancer or fry my ovaries. but i also need a definitive answer on having new stones. ultrasound on monday said i have 3 stones that are all pretty large, when my kidneys were clear in july. i am having symptoms (constant 4-5/10 pain in both kidneys).

Been dealing with this for weeks. Saw my pcp on Monday and got flomax. 3 days on flomax and finally passed the bastard!

Was an odd sensation, felt it dislodge in my bladder and just pop out. Didn’t hurt at the time but would say I’m a little sore now? Had a bunch of tiny fragments I guess there is one right next to the tape measure there that I guess broke off from thff ed main one…

Hoping soreness goes away quickly. And I can stop the constant feeling of needing to pee

Have urology follow up scheduled for December 2nd so will see what they say

Just the stone but marked nsfw just in case

Thank you all for support and information here. Been very supportive and helpful for someone dealing with this for the first time

I am looking for advice on recovery and pain levels following the Laser Surgery treatment options.

Currently I am passing a 5mm stone in my right kidney to which it has been stuck for quite a while in nearer to my kidney. I understand that they found 8-10 stones in both kidneys, one measuring 6mm, to which they are going to try to remove all within two different surgeries. I assume one surgery on the right and then one surgery on the left.

I have heard horror stories of this procedure and the pain that the stent causes. I am looking to get some realistic advice as to what to expect or other peoples experiences who have had a similar amount removed.

Time to recover
Amount of pain for how long afterwards
Stent experience/pain
General feeling afterwards.
How you coped with recovery and pain.

Thank you all. I am hoping it is not too bad, but I am preparing it to be just in case.

Prior history-
September 16- admitted to hospital due to complete kidney blockage thank to “5.5-6.0mm” stone that was embedded.
September 17- stent placed
September 18- discharge to go home

I’ve had 2 X-rays since first stent placement, neither time was the kidney blocking stone found. Went into hospital yesterday to have laser stone break up or removed and received new stent with strings attached. Stone was removed, and was much larger than initially thought. I lost all ability to sit down and pee on my own, but when I moved around or stood up, pee and blood was constantly draining/gushing. So I’ve been wearing Depends adult diapers. Ton of pain in back, stomach, and urethra.

Decided to shower this afternoon because I’ve been peeing on myself for almost 24 hours and felt gross. To my surprise, about 2 inches of my stent was hanging outside of my body! Hasn’t been like that but it was when I was showering. Freaked out and called the surgeon, who walked me through removal at home. I almost passed out from the pain. But the stent is out now and I’m trying to convince myself to get off the toilet and get in my bed. I’m extremely lightheaded and the surgeon told me the pain may increase for a little while, but it should taper off. I took a dilaudid and tramadol right as soon as I got out of the shower, while waiting for surgeon to call. I would not wish these kidney problems on my worst enemy.

This isn’t even the worst part- we still have to operate on the left side.

I was in the ER two days ago because I was experiencing the most intense and excruciating pain I have felt in my life. CT scan was done and found that I have a 3mm kidney stone on my left side that was actively passing as I was waiting in the ER and it was sitting at the top of my bladder when I got my CT scan done. I have been at home since yesterday afternoon determined to pass this freaking thing and drinking a lot of water and peeing as much as I can. I went to the bathroom again about an hour ago and found what is in the picture, on my bathroom floor next to my toilet. I have been straining my urine but have found nothing, until now on the floor. I am a 30 year old female and read that because of a woman’s anatomy, sometimes a kidney stone can be found in your bed, clothing, etc. I was referred to a urologist from the ER doctor and I do not see them until Monday. It is driving me absolutely nuts not knowing if what I found was my kidney stone or not because I just want some mental relief that it is for sure out of me. What do you guys think?

For about a year now, I’ve had a 2-mm stone in the lower left part of my ureter, just before the bladder. It just won’t come out. I also keep getting urinary tract infections caused by the same bacteria over and over again, and I have persistent kidney pain every day. I’m already taking tamsulosin. Does anyone have any other advice?

What does it mean when the burning sensation stops but the frequent need to pee remains ?

I am new to the kidney stone game so I’m not sure if this is normal.

My stones were caught on a CT for my gastroenterologist. Ended up in the ER the next day with pain and vomiting. Second CT showed stones too but both reports noted a likely obstruction of the UPJ with moderate hydronephrosis.

I was scheduled for shockwave therapy which was successful in breaking up the stones but I passed nothing but dust and because pain management isn’t a good option for me because I have errosive reactive gastritis the laser treatment was done and a stent placed for two weeks. Stones were a mix of calcium oxalate and calcium phosphate.

Had the stent removed two weeks ago and the doctor scheduled me to return in four months. However, I have continued to have pain. This week is worse than last week with aching in the kidney and what I recognize now as ureter/bladder spasms.

I have reached out to my urologists office and am waiting on a return phone call. I had a couple flomax pills left and that is the only thing that has provided some relief.

Is it likely this is stone related or a true UPJ obstruction that needs further evaluation? I have been pushing 2-3L of water daily and am noticing more pain when drinking more which tends to make me think the hydronephrosis is still a possible factor.

Hello all, I'm on my third kidney procedure of my life and I have a sinking feeling it won't be my last.

For context, at 12 I had a pyeloplasty (or whatever) to remove a congential blockage and I assume a fuck ton of stones from a kidney that hadn't worked until that point.

Last year (age 35) I had a stone blockage kick up and put me in the hospital for days waiting on a procedure (scope, but no stent) It turns out I have struvite stones, but no symptoms of an infection at all! I go back to work 4 days later a complete mess because my note didn't cover any recovery time at all.

No labs have been run, no discussion of antibiotics or any sort of prevention or reason this is happening? Is this normal?

Then, last month on a 1 year follow up it turns out I have 4 more stones (or possibly some of the same stones, I'm not convinced the first procedure removed all of them in the first place)

Apparently at the time i also had a "moderate blockage" (little of which I could even feel) and suspect I'll be in for a procedure quickly. Apparently by the time I go for the ct, the blockage is gone so I'm booked out 6 weeks later for the scope and a stent. This in itself is fine, except it puts me into the busiest and most physical season of our year.

Y'all I do not have the means for this and the note is only for a week, I do not have a desk job. I lift a 100 25lb bales of branches and haul around buckets full of water and more plant shit on a daily basis. No idea how long the stent will be in but I can tell ya I will not be doing that with a tube in my kidney, thanks.

Luckily I have some room to wiggle things around and can delay the procedure until after christmas when I am off work for a bit anyways...but ultimately I have zero faith in my doctor and finding another is feeling like it is not worth the chase as I doubt they will be any different.

Sorry for the vent but I am frustrated 😠