I have a 4 year old boy with severe autism. He’s smart and understands a lot but is nonverbal, lacks all social skills, and has severe oral sensory aversion to the point where he only drinks pediasure for nutrition. As in, he’d be tube fed if he didn’t willingly drink it.
He was 2 at his first dental appointment, which I know is late, but we were afraid of how it would go since its nothing but things in his mouth and he can’t even having pudding in his mouth without retching. But I finally found a place that said they specialize in autistic kids and made an appointment.
It went horribly. We were in a room of about 8 chairs all crammed about a foot apart from each other, and other kids were getting work done which was very loud and scared him right from the jump. The assistants were kind and tried to get him to open his mouth, but he wouldn’t budge. Which I figured would happen. Then the dentist came in. She had a thick accent, which wouldn’t normally be a big deal, but it was coupled with very little communication. She didn’t seem to grasp that my son genuinely could not follow her instructions and acted like it was a behavior thing. She was surprised when he refused to open his mouth.
In the end, they made me lay in the chair and pin him down with my legs and arms while they forced his mouth open. But he fought so hard that they couldn’t even get a bite block in, and he bit the dentist hard enough to make her bleed and rush from the room.
We got referred to a place where they put kids under for exams. We went, and they looked at him and cleaned his teeth, and it was great. But the dentist there said we shouldn’t come back unless he has cavities or something because they don’t like doing sedation just for cleanings. But there’s no way to see if he has cavities if he won’t open his mouth?
Anyway. Six months later, we went back to the first dentist for another cleaning. They made me hold him down again and tried to force their way into his mouth. The dentist, same lady, kept saying things like “time to start behaving! You need to listen to me.”
My son thrashed and screamed and eventually bit down on the mirror tool and shattered it inside his mouth. I think he got a cut on his lip but no other injuries thankfully.
That was six months ago, and they recently called to schedule his next appointment. I told them no. None of that felt right to me, but I don’t know what is right. What is a dentist appointment supposed to look like? I want to know what to look for in a practice so I don’t have to put my son through that again.