Hey there!
I'm a 27 y/o man struggling with intense fatigue and insane sleeping lengths. I've always been a big sleeper, needing 9-10 hours each day to feel refreshed. However, in the last 5-10 years, it has picked up dramatically. Despite countless trips to different health professionals, I'm still left empty-handed.
An example of a day for me: go to bed at 11PM, wake up between 2-6PM, do a few tasks, nap for an hour, intermittently take care of the house and get any work done I can, back to sleep.
Every now and again (I call it "having my will-power meter full"), I'll have a day where I can grit my teeth and force myself awake on 10-12 hours of sleep, though I'm still napping.
The issue for me is that this isn't a problem I've been able to fix through will-power and discipline. I can force myself out of bed and sloppily walk around at random intervals to make sure things are taken care of, but then I find myself back asleep almost as if I don't remember laying back down. I'm able to live because I am a content creator, so I can get away with 3-4 hours of work in a given day. I am very fortunate in that regard, but really wish I could put more time into my career and set myself up better. The fatigue when awake is so intense that it feels like I am manually forcing my eyelids open, and that my body weighs 10x what it actually does. I am constantly dissociated.
If it matters, I am 5'9" and around 170 pounds. I was a high-level athlete and still retain that sort of stocky "football player" build with visible abs and vasculature. Though I've noticed muscle atrophy from lack of exercise lately.
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Things I've tried:
- Bloodwork: every lab a doctor and I could think of, from vitamins to thyroid, hormones, etc. All levels come back normal besides slightly elevated blood sugar, and testosterone in the upper 300s which seems a bit low for someone my age. Doctors have started shrugging me off and ceased bloodwork orders, telling me to go to bed earlier and talk to a therapist. This really makes me feel weak and broken, but this issue is sincerely something I can't control anymore.
- Regulating sleep/wake times: going to bed at the same time and "waking up" at the same time. It was never fruitful because the waking fatigue was too intense that I'd find myself randomly waking up in weird places. The initial getting out of bed required every ounce of will-power I could muster, and I couldn't win that battle every day.
- Stimulants: I was prescribed Vyvanse for ADHD with the dual-purpose of promoting wakefulness, the stimulant does not help me stay awake at all.
- CPAP: diagnosed with "mild" sleep apnea, at the minimum amount of episodes to be considered a diagnosis. Used a CPAP for several months with no improvement. It has been a few years since this, though.
- Psychiatric assistance: my PCP pushed me to do counseling/therapy siting that my mental health is the likely trigger for my fatigue. I have been seeing a psychiatrist and a therapist for 3 years now and actively implementing their ideas, no improvement in physical symptoms, but headway on my mental health.
- Morning routines/sleep hacks/"health hacks": all of the classics of cold showers, lights and exercise in the mornings, caffeine/l-theanine and other nootropics, all the "bro science" approaches as well. I also have tried blacking out my room, optimizing sleep temperatures, putting more light in my room to wake me up, etc.
Known health conditions:
- ADHD, major depressive disorder, PTSD, DPDR disorder, tachycardia, Crohn's disease, psoriasis
Things I've noticed from journaling/introspection:
- I feel "better" at night time than any daytime hour.
- If I front-load my day with an obligation involving another person, my success rate of waking up is higher as to not disappoint that person. I do not last very long in that social setting though, and become even more fatigued afterward.
- There is definitely some sort of dopamine issue. I can't do anything most days besides drag myself to a screen of some sort.
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I'm not posting today for the internet to replace my doctor or anything like that. I'm simply reaching out to see if there is anyone out there that has an idea for a solution to this problem that myself and my health professionals have not yet considered.
I am mentally spiraling and beginning to lose hope that things will get better. I feel incredibly guilty that I'm wasting the prime years of my life, and all I want is to be able to enjoy the same amount of time that most other people do each day.
If you have any ideas, please throw them my way. I also can clarify any additional details that may be needed.
Thank you so much for your time.
TL;DR: I sleep 12-20 hours a day, and have tried every conventional method of promoting/achieving wakefulness. What should I do next?