Since August 16, I have had a kidney stone. I went to the ER and was told a 7mm kidney stone would be easy to pass. Haven’t passed it and went to another hospital. No help there either. Went to a third hospital and finally got to get in with a urologist the week after. Also found out that not only do I have the obstructing 7mm kidney stone, but also a 1mm one right behind it. Was basically fighting to get in with one. Every time I called one of the urologists, either the appointments were way out or I had to wait at least 6 weeks for the referral to go through. I get to have the procedure done on October 28. It will be a ureteroscopy along with laser lithography and a stent being put in. What was it like for you? I never had a procedure like this done and would love some tips and hear about your experience with it.

I have finished my 7 days of antibiotics and I'm feeling much better apart from a bit of back pain and fatigue/very low energy. Is it normal to still have mild symptoms after finishing antibiotics or is it a sign that I need a longer course of antibiotics?

I'm in the UK and it's really difficult to speak to a doctor - they're pretty hands off.

Thank you

Hi everyone! I’m a bioengineering student at Rice working with a team on a project related to chronic kidney disease.

We’re trying to learn more about the actual day-to-day problems people with CKD deal with so we can focus our research on something that would genuinely be useful. We made a short questionnaire for people with CKD and caregivers to share their experiences and what they wish could be improved.

This is not a medical study and we’re not selling or advertising anything. We’re just trying to hear directly from people who actually live with CKD rather than guessing what would help.

If you’re willing to share your experience, here’s the form:

https://forms.gle/4kygNrNfReuKHMSR9

Thanks!

For the last 5 months I have been having these episodes of intense left-sided flank pain with nausea and vomiting. The pain lasts maybe 3-4 hours and then I have a day or so of nausea afterwards. However, the most recent episode has been the worst and has lasted 7 days so far. I've been to the doctors and a urine dipstick showed trace amounts of blood and white blood cells so I've started antibiotics. Currently, the pain is waves throughout the day and tends to be worst in the evenings. The nausea is worst first thing in the morning and reappears throughout the day; eating and drinking helps the nausea.

I originally suspected a gynecological cause (such as an ovarian cyst) due to the monthly pattern, but my doctor seems to think I have a kidney infection and the previous episodes may be due to a kidney stone. I'm waiting for an ultrasound scan of my kidneys, which will be in a few weeks. I'm not eligible for a CT scan as I haven't been in the doctor's office when in enough pain (because it takes so long to be seen). I have had all of my back and stomach felt/palpated and I have no tenderness.

Does anyone have ANY ideas of what it might be? I've been Googling and Googling and haven't come across anyone with a similar pattern of symptoms. Thank you.

I was diagnosed with a kidney infection due to back pain and nausea and my urine showing the presence of white blood cells and blood in in a dipstick test. I've been on antibiotics three times a day for 4 days now and was starting to feel better around 24 hours in to my antibiotics.

However, today the pain back and nausea has returned along with the feeling of not having any energy. The back pain sometimes feels tingly too and like there's pressure (but I'm not sure if I'm just overly aware of my back and having psychosomatic sensations). It's a gnawing kind of pain - like a stomach ache but in the left side of my back.

Does anyone have any advice on if this still sounds like a kidney infection (as opposed to a kidney stone or something else?) Is it normal for recovery to wax and wane through the course of antibiotics?

Title: 38M – Right kidney only functioning at 23.6%, severe UPJ obstruction. Surgery or leave it alone? Anyone been through this?

Hey everyone, 38M here. Recently found out I have a pretty serious issue with my right kidney that may have been there since birth.

A CT scan showed severe hydronephrosis, thinning of the kidney tissue, and what appears to be a UPJ obstruction caused by a blood vessel crossing over and compressing the ureter.

I just had a MAG-3 Lasix renal scan, and the results showed:

- Left kidney: 76.4% function, normal drainage.

- Right kidney: 23.6% function.

- Significantly reduced blood flow to the right kidney.

- No significant drainage from the right kidney, even after Lasix.

I've seen two urologists and gotten different opinions. One discussed robotic pyeloplasty, where they cut and reconnect the ureter to bypass the obstruction. The other felt the kidney was probably too damaged and recommended leaving it alone.

Now that the scan shows 23.6% function, I'm wondering if that changes things.

I occasionally have a mild ache on my right side, but nothing unbearable. Otherwise, I've been living a pretty normal life and had no idea this was happening.

I'm curious about anyone who's dealt with something similar:

1. What percentage was your kidney functioning at before surgery?

2. Did you have pyeloplasty, or did you decide against surgery?

3. If you had surgery, did your kidney function improve, stay the same, or continue declining?

4. How painful was recovery, and how long were you out of work?

5. If you chose not to have surgery, how has your kidney held up over the years?

6. Did anyone have a crossing blood vessel causing their obstruction?

I'm especially interested in hearing from people whose kidney was functioning around 20–25%.

I'm not looking for medical advice in place of my doctors. I'm following up with my urologist, but I'd really appreciate hearing people's real-life experiences before making a decision.

Thanks!

Edit: My CT showed severe right hydroureteronephrosis with cortical thinning and atrophy. The obstruction is believed to be congenital, possibly involving a crossing blood vessel.

I've also had a MAG-3 Lasix renal scan to evaluate the kidney's remaining function.

I'm considering a nephrology consultation as well. I'm mainly looking to hear from people who've had similar findings and whether they chose surgery or continued monitoring.

Apparently it’s at home uACR test that is FDA approved. I took it to help confirm lab test I received in September. Results said it was elevated, so I decided to send the results to my MD for confirmation. I’ve recently had a bout with H Pylori and of course my body is still inflamed so I don’t know how serious to take the results. I’m 34 years I quit smoking August 30th, I work out but I could work out more. I’ve even changed my diet eliminating junk foods, fast foods, sugars, and red meats. I’ve made so many changes and this at home test has me terrified that my kidneys will eventually fail. Lab numbers below

**BUN 15:** normal
**Creatinine 1.3:** mildly elevated
**eGFR 73:** mildly reduced estimate
**Sodium/potassium/calcium:** normal
**Albumin:** normal

I've been wanting to share this for a while, but wasn't sure how to explain it without sounding like I'm promoting something.

I have a background in emergency medicine and healthcare administration, and I've also experienced kidney disease and lupus personally.

And one thing kept bothering me.

What happens after the doctor's appointment?

You get your labs. You hear about your kidney function. You might be told to watch certain things, make lifestyle changes, or come back for another appointment.

Then you go home.

And life keeps happening.

You're at the grocery store trying to figure out what to eat. You're looking at lab results wondering what changed. You're trying to remember how you felt last week. You're searching for information at night, trying to separate useful advice from questionable claims.

And sometimes you just want to talk to somebody who understands.

I kept wondering why so much of the kidney-health experience felt scattered across different places.

One tool for tracking. Another for medication reminder. Random internet searches for everything else.

I wanted something that brought more of the everyday experience together.

So I started building it.

It's called CuraHome Kidney.

The idea is to connect kidney-health tracking, lab trends, AI-assisted lifestyle education, holistic nutrition, alkaline diet and herbal education, structured wellness activities, kidney warrior community, and access to approved professionals in one place.

It isn't meant to replace a nephrologist. It's meant to change how they approach and treat kidney disease patients.

It's also meant to help people feel more informed, educated, and supported between appointments. It was created to give kidney disease back their power.

And building it has made me realize how many small details matter when you're creating something for people dealing with a chronic condition.

I'm still learning from feedback, especially around making the experience genuinely useful rather than just adding more features.

I'm curious about something, particularly from people living with CKD or helping someone who is:

What's the one thing you wish existed to make everyday life with kidney disease easier?

Not necessarily another tracker. I mean something you genuinely wish you had access to.

I'd really like to hear what people think is missing.

had my first ever kidney stone about 6 months before getting pregnant. It was some of the worst pain i've ever experienced. I'm not 100% sure if I ever passed it or if it's related to the more current pain I've been having randomly. When I was pregnant, I would randomly get debilitating severe kidney pain and end up going to the ER thinking I had a kidney stone again, but they could never find anything. I couldn't get CT scans because I was pregnant and the ultrasound on my kidneys didn't show anything. It was at least once a month that this would happen. Since having my son, the pain has still been coming and going randomly. It always starts with my middle back aching & that's what always tells me the kidney pain is about to happen. It's so severe that i'm sweating immensely, throwing up and writhing in pain.
Lately the pain will go from my back, to my left kidney and then the middle of my stomach just below my ribs will feel like it's burning until i throw up everything in my stomach and then it will finally start to subside. I have talked to my doctor about this. he referred me to get a ct scan but my insurance just denied it after describing my issue as "belly pain" i am just feeling so defeated. i dont feel like he really even takes me seriously on the matter either. i am seeking another doctor, but i have two kids and it's so hard when this happens when i am alone with them. it scares my 2 year old so bad and i am so debilitated i can't properly care for them. i have done so much of my own online research and absolutely nothing i have come across matches what is going on with me. has anyone experienced anything like this who can give me any advice or different conditions to look into? also mentioning that i did have preeclampsia/high blood pressure during both pregnancies

27 male history of mdma this year 1 or 2 pills on the weekend not everyday I wad stupid and depressed and I made the decisiom and will live with it idk if I permanently damaged my kidneys just need some advice not here for a pity party or anything i jist worry a lot about my past choices