hey guys, Please give me an advice.
promise i wont come with same question again.
I am a 31YO female
In 2017 (First cardiology visit) Found T inversions v1-3 and Mild apical trabeculations at the apex. Had stress test and echo and all fine. EF was 55-60% doctor was not concerned.
2024 - Had MRI and Holter for the Pvc that I had just in bed before sleeping ( Anxiety started as My dad passed away at 65 sudden in sleep, but with symptoms of Heart attack) No early death or sudden in my family. Doctor understood that they suspected me in My country for non compaction but no, they suspected me for Myocardial bridge. So they asked for MRI for a suspection of Non compaction cardiomiophaty
MRI showed mild reduced EF 56% (hipokinesia)
no fibrosis ,scar, or other abnormalities but Said that im suspected or Early stage hipokinetic non dilatated cardiomiopaty and plan was to repeat the Echo 3 years later . I said Okaaaay and didn’t care
in 2025 I started with bad panic attacks, somatic Anxiety, sometimes , HR is up every morning for the first 30mins(90-110) And I feel heavy, Scared, chest pain ( few seconds) even hand pain😅
CT is perfect so no ischemia.
I ve been so many times to AE (38+ in 1 Year) with Anxiety attacks and also I must confess.. I did lie few times about pains duration, That I get breathless while walking and so on.. because I been so many times and I couldn’t tell them: You know.. I had doom feeling and some heat around the body)
And now every cardiologist in UK is looking at that “suspected cardiomiopaty”)
my EF at Every echo is 60% and I had 4
Stress test show no hypokinetic or reduced EF . Is (60+)
or cardiomiopathy usually sits quiet ?
I wonder did I made the doctors add and continue with this diagnosis because What I told them ? I am even scared to belive doctors anymore because:
I had CT in Uk and showed possible LAD stenosis 50-70% LAD. And started statin and aspirin 3 months
Treadmill was negative for ischemia and they discharged me and booked a stress Mri (with adenosine)
because MRI was not ready after 2 months and I was so scared for my life that, I did call hospital so
many times told them : Hey I got Lad stenosis And I need MRI to see if I must proceed with angiography
The result was All fine Viable segments ,Heart function 60%+ (but keep in mind it was stress mri) but possible Ischemia in 2 segments within Lad
doctors added me to waiting list for invasive angiography.
So I did Fly to my country , And had repeated CT on a very performant CT scanner(Somatom Force)
and showed 0 calcium and 0 stenosis(perfect CT)
They didnt want to listen to me that I have a perfect CT in Romania and they said that because MRI they cant listen to Romania CT
I did book privately with my Cardiologisst and gave the CD with my CT angiogram and so, Doctors and tehnicians compared the CT and they sent a letter saying that ( Stop statin and aspirin) There were artefact in processing images
that s why I am scared .. what if they tell me about cardiomiopaty because I already had a “suspicion” which is not true.. I explained the doctor wrong As they suspected a myocardial bridge as per Ekg
I repeated Echo 3 weeks ago and was ok… 60% amd no hipokinesi
Is better to search other doctors in my country for the MRI ? To accept I have early stage cardiomyopathy for the past 10 years and no medication ?
i had repeated mri here but by the same doctors. results are not ready yet