I’m a mom to a 3-year-old little boy. For background, I’m 27 but often told I look much younger. Because of this, I sometimes feel judged, especially in these situations.
My son has about 20 words and has been in speech therapy since he was 18 months old. I advocated for him and wanted him to receive services before his pediatrician even mentioned it. He got ear tubes less than six months ago and has made so much progress from that alone.
Now that he’s transitioning from Early Intervention to therapy through our school district, he had to go for an evaluation. The communication just to get the ball rolling with the next step was very poor, and I wasn’t provided paperwork on time. Because of this, he’s had a gap in services.
I feel shamed and gaslit because they love to point out that services are “optional,” but then often make remarks about how he’s had a two-month gap in services, which wasn’t my doing. Also, now that he’s following a school schedule, even though services continue at home, he’s going to have gaps in services either way.
For starters, the evaluation involved a speech therapist, a special education teacher, and a therapist performing a psychological evaluation. I felt overwhelmed and like I wasn’t even able to fully go over all of his skills in such a short period of time.
They put us in a room full of toys with a divider separating us from another child who was receiving speech therapy. I was first met by the speech therapist, and then the other two showed up. They had all texted me the same date and time, and I had communicated that my son was having his speech evaluation that day and that the other two therapists also wanted to join.
The speech therapist didn’t even know they were showing up and seemed annoyed, telling them they should have texted her. Again, another example of the poor communication.
When my son had his first evaluation, it was much more organized, less overwhelming, and involved much kinder therapists who actually took what I said into consideration instead of writing me off.
This evaluation was a mess. They were flooding my son with toys, so all he wanted to do was play. Then they were getting upset when he wouldn’t demonstrate certain skills, like pointing to a body part.
I told them about all of his skills but felt very written off. They explained that because certain things were “self-reported,” he would score lower. They also reassured me that it wasn’t that they didn’t believe me. I never said they didn’t believe me in the first place, so it felt very condescending.
The speech therapist was the most condescending. I felt like she questioned everything I told her about my child. For example, I mentioned that he makes great eye contact, and she responded, “I’m not seeing that.” We had only been there for about three minutes at that point! Then, anytime he made eye contact, she pointed it out.
I also explained that his eye contact is documented in the notes from the therapist he’s been seeing for the last year and a half, twice a week. However, they didn’t have access to her notes because I wasn’t given a release form until I was literally walking out after the evaluation was finished, which I then had to mail to them.
The entire experience felt extremely overwhelming, and I felt completely written off. Everything my child did was noted, and it really upset me.
I’m not upset that he needs speech services. That’s literally why I’m here! I’m upset about how we were both treated, and it was honestly really hard to keep my cool. I wanted to cry out of frustration.
Outside of his speech delay, I haven’t noticed concerns in other developmental areas, and neither has his previous speech therapist. Even if he did have delays in other areas, I still don’t think the way they treated us was appropriate.
They’re supposed to be doing their jobs, but I can’t help wondering how parents of children with more significant developmental delays or diagnosed disabilities are treated during these evaluations.
I even mentioned how, at his first evaluation at 18 months, the physical therapist brought up that he seemed to have low muscle tone. I was explaining how his pediatrician had never mentioned anything about it before, and they all jumped in to tell me how doctors don’t know about that.
I never denied that he could have low muscle tone! I was simply explaining that his first evaluation was the first time it had ever been brought to my attention.
Am I wrong for thinking the whole evaluation was BS? I understand that I need to go through this process to continue my son’s services, but it still upsets me.
Has anyone else had similar experiences?