Been on a hell of a ride the last 4 years. 7 urologists, 3 pelvic floor therapist, countless tests DREs and scans. Always told its inflamed and boggy. Im 46 (43 when this started 3 months after covid) ive fought for every possible test. Sent to infectious disease who dismissed me without extra testing. Just told (like every moderator on here) that its pelvic floor..
My last semen culture was positive for bacillus. My wife had reoccurring ecoli after intercourse. They NEVER properly tested me for this or treated my wife and I simultaneously.. ill knees really know if its a factor.
My prostate was 50cc to start. 40cc after a 20lb weight loss but symptoms remained. My 2nd pelvic floor therapy straight up said she can't help me. Im still exploring a 3rd hoping for internal work just in case. BUT... fingers crossed, im feeling better these days.. here are my diagnosis and findings
EOE, Asthma, MCAS, a ton of environmental allergies and low testosterone. My hair is also starting to thin. I believe the testosterone is causing ED problems. Cant do TRT because we want one more kid. My semen is clear and watery still but im fixing my diet and adding exercise and sleeping better to fix the testosterone problem.
I'm still losing weight and hoping to see my prostate go to 25-30cc after another 30lb weight loss. My PSA is still elevated but urine flow is fine aside that is still slows a bit when I push to make the stream stronger (opposit effect)
I believe now that most other symptoms are clearing up after starting Dupixent shots for EOE / MCAS, and also hydroxyzine but switched to mirtazapine because of the dementia risk. My inflammation is systemic and not just in the prostate.
I cleaned up my diet. Consuming chickpeas, eggs, chicken breasts and a ton of non starch veggies. Homemade avacado oil mayo for healthy fats. Sushi with a ton of soy sauce and Wasabi when I feel low on electrolytes. Also lots of raw garlic and onion. And I sometimes consume beet juice mixed with water.
The dupixent stips 2 types of inflammation and I also combined it with 500mg naproxen sodium 2x a day for 2 weeks
My issues I believe were multi factored. Being overweight more than I realized causes a hormonal imbalance turning testosterone to estrogen. Too much sugar and grain flours causing added inflammation..
I basically had to take a hard look in the mirror. Pretend I'm someone outside watching a movie with me as the lead, and thinking about how they would see me.. most likely the first person killed in a horror movie.
The mods here push pelvic floor therapy hard and refuse to acknowledge anyone with bacteria. I did have bacteria in my last semen culture and they would have prescribed one last antibiotic but I just had ankle surgery and there is a big risk for tendon rupture. I believe the clean diet along with raw garlic and onion is helping my body clear is out naturally.
I can't exactly prove its working yet without another culture and or more scans but I can absolutely see a difference so far.
The key is lifestyle change. You have to be tough on yourself and make a true assessment. Most people won't see how far they have changed for the worse since high school.. this will not be for everyone of course but ask yourself, when was the last time you ran around the block? Or layed of inflammatory foods?
I have MCAS and learned a lot about how inflammation can build up over time and wreck your body.. mine seemed to be enhanced by covid but many symptoms were lifelong beforehand just very mild.. i finally feel good about the future even though my wife has had 4 miscarriages in the last 3 years. My goal is to work on my physique and stamina / blood flow for the next 3 months, reassess the quality of my semen and go for a semen analysis, and then try to conceive one last time.. Hopefully I will update later on with good news..