I have to travel for work in the coming weeks. Since I was diagnosed, I've been eating every single meal home cooked as I've noticed that high sodium is a trigger for me, leaving me in a state of vertigo for 24 hours or more. I'll be staying in hotels, on airplanes, etc, and won't have a kitchen in my hotel. Also as I'll be at events, there will be food there and I'll get hungry, obviously. Are there standard go-to restaurants with good and affordable options that you typically go to? This will be in the east coast and midwest of the USA by the way.

Thanks for any tips

Hi, newbie to the group here, but not a newbie to Ménière’s. I was diagnosed in 2011 and it has been quite a journey. I wanted to ask how many people with Ménière’s here have adopted a low sodium diet and whether it has been successful in lowering symptoms?

So do people take it temporarily when they feel symptoms coming on or do they take it all the time to help keep symptoms at bay? I’m confused.

Has anyone seen an Immunologist for this?

I am 100000% steroid dependent at this point and my biologic drug isn't working to get me off steroids. I can't even go lower than 35mg now. (Please don't lecture me about the danger of steroid use. Trust me, I know by now.)

I've heard that immunologists can help figure out where/why the inflammation is happening. I'm very curious if anyone has had any luck with one in the US. I'm willing to travel anywhere at this point - even outside the US.

Also, props to anyone who has been able to continue their life once their hearing has dropped significantly and they're STILL left with horrible tinnitus. I can't take more than 24 hours of it without seriously considering ending it all. Not to be grim on here, but this disease is hell and it just continues to take more and more away from the people who deal with it. I'm so sorry to all of you.

Hi, I'm interested if there's anyone who had the injection in both ears

To users of WeatheRX ear plugs and its app,

how large a change in pressure causes you to use the ear plugs; and does the direction of change matter?

I know this has come up before here, and there's a range of opinions but I thought I'd add my own data point.

I started NUCCA treatments a couple months ago and the improvement has been significant. Since I started, I have had only one day of dizzy spells (previously they were several times a week) and my general feeling of seasickness (nausea, headache etc) is substantially reduced.

Everyone's Meniere's is different so who knows if it will work for you. What's odd is previously I identified gluten as a strong trigger of vertigo and dizziness so I would not have thought alignment issues played a role. But maybe it was cumulative.

Hearing loss and tinnitus is unchanged, my guess is that its never going to go back. But getting rid of dizziness and unsteadiness is huge.