Hey all,

Finally had my cystoscopy two days ago wow that was painful.. i wanted to pretend it doesn’t hurt as bad hate complaining as well but it hurt:( it isn’t as bad during the day than it is at night and I don’t know why but I feel the throbbing pain more at night how long did everyone else recover?

I know everyone is different I also got my time of the month a day after so that isn’t helping either🫠.

A few months ago I posted on here about lactoferrin and how it had calmed a flare i had almost immediately- I’ve come back to say it’s happened again. I am in a flare after taking some probiotics the urologist was trying and after a week of pain I tried lactoferrin again and it’s gone within 24 hours.
Now, it’s worth saying my flares are pelvic floor related, not bacterial related, so I get immune responses to things quite badly and that irritates my bladder and then my pelvic floor guards and I get constant pressure and urethral burning between toilet trips. So it could be that it only works for mast cell related bladder irritation, but it is miraculous for me.
Wanted to share as I still can’t quite believe how well it works.

It's 44 minutes until midnight here and I'm still awake. My nuerological condition causes involuntary movement and it's killing my bladder. Omg. I'm soo tired. The urologist perscribed me medicine that I'm going to take to hopefully help with this. Any other suggestions on how to manage the pain I would greatly appreciate. Thanks in advance

I am 45M. I am noticing a clear link between constipation and bladder pain. I am already on MiraLAX daily and psyllium husk. I am a little constipated right now and my bladder pain is bad. I think I ate something recently that didn't agree with me. Does anyone else have this issue? Do you have any tips to manage this in addition to figuring trigger foods and consuming fiber?

Mirabegron? How has it worked for you ?

This is my first post on the subreddit.

Backstory: early January I believed I had a UTI, but after so much tests coming back negative, I finally was able to get in contact with a urologist back in late September. She said that there was a chance I had IC, so she gave ne medications to pick up, most notably one that was similar to Azo. I have also been using Oxybutynin at night. I am also going to go back to the Urolgist for a follow up November 4th.

According to the Urologist, she wanted me on a strict IC diet. So I have been following close to it. It was doing well at the start, but suddenky been having bad cases of urgency and a bad flare that acted up for two whole days depsite the fact I have been eating well.

All I have been drinking is milk and water and been subsiding on nothing but chicken sandwiches made out of pull-apart rotisserie chicken and American cheese + chicken-cheese quesdilla's using the same ingredients. I am just having a moment of feeling msierable, especially coming from a family of Italians; having to never touch tomato sauce, lasagna, or anything like that ever again, plus my love of pepsi just makes me want to die inside.

I am not sure if I will ever feel better, and I can't imagine a time where I will see the light at the end of the horizon. I miss the foods I used to eat like pepsi, italian cuisines, and especially chocolate.

Just want to vent my frustrations.

27F, would like some advice on if I should do the bladder instillations which my urologist has recommended! All claims below are anecdotal not empirical :)

I’m scared the instillations will cause tears/damage/reinfection/make things worse!!! It would be great to hear from people if instillations have been worthwhile, and about complications/side effects in the short, mid & long term.

Symptoms: Pain, urgency, numbness/tingling, nerve pain down my legs, you know the drill if you’re here! Currently am not in employment cause of the unpredictable flare ups + other health issues. Super keen to get back to work asap: I miss working in a team and being dependable/ relied on. But upside is I do have time to recover if I do instillations.

Things I’ve tried for urinary issues
- hiprex, taking it every day. Definitely has reduced infections and systems after after a tricky teething period of making things a bit more painful
- had the uromene vaccine in early 24, think it made things better, or at least helped me understand the histamine mechanism for pain which has been instructive in how I manage symptoms
- tried IC diet (slow reintroduction of chilli after multiple years off has been mostly ok). Am still relatively careful!
- yoga, gentle stretches, pelvic floor relaxation techniques and meditation

Relatedly, i also have recurrent vaginal infections for years. since august I’ve been infection free, still unclear on if these methods are long term effective treatment
- I did a course of vag inserted nystatin+metronidazole cream for ten days starting the day my coil was inserted in august. This treatment isn’t available in the uk so I picked up this cream in Brazil.
- i use balance activ after sex every time - this has helped with recurrent infections.
- I used Crispact (oral probiotics containing lactobacilli’s crispatus), and lactogyn (various lactobacillus strains, inserted vaginally after sex). Both of these I acquired in Bulgaria
- new partner who is very intuitive and I trust deeply, knows when to stop and when I’m pushing my body too far/quickly sexually.

Thanks for listening everyone!!! <3