r/AdrenalInsufficiency • • 22h ago

Looking for advice cah and high anxiety?

5 Upvotes

hi everyone! i was diagnosed with (non salt wasting, classic) cah as a baby and have pretty much never had any issues with it aside from a single adrenal crisis as a toddler. my family have always followed the rules of updosing during illness or significant injury and i'm rigid about keeping on top of medication dosages (prednisolone and fludro).

i've always suffered from a lot of anxiety that presents typically surrounding high-stress scenarios, new social scenarios etc. though people who understand the role of cortisol have always questioned me as to how someone who doesn't naturally produce much cortisol could be so anxious, i was pretty much dismissed when i brought it up to my endocrinologist (who isn't really familiar with cah in itself, because apparently nobody in australia really is...) and figured it wasn't connected. however, i've seen recently a lot of people with ai discussing dosing up during periods of emotional stress or even having crises as a result of stress and became curious.

i typically become more fatigued, headache-y or even depressed following times of higher anxiety but i never thought to associate it with cah and potentially needing to updose as i thought it was just associated with coming down from that kind of stress. i'm curious as to how other people have dealt with cah and anxiety - it seems that there's not really a consensus on it?


r/AdrenalInsufficiency • • 12h ago

Awareness Portland, Or Meetup. Sun 10/18

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5 Upvotes

r/AdrenalInsufficiency • • 8h ago

Looking for advice solu-cortef questions!

1 Upvotes

Hi everyone, I have a new diagnosis of [I think it's primary?] adrenal insufficiency, I've been started on hydrocortisone and have noticed a tremendous improvement in my energy and mentation levels since.

I have been struggling however with getting my emergency meds, both because of insurance and because my endocrinologist's office is a bit... um. let's just say "disorganized" to be polite.

I picked up my syringe and my vial of hydrocortisone the other day and... it's a vial of powder? is this how solu-cortef comes? My pharmacist said that if I'm supposed to use this I need a prescription for a vial of diluent, which I didn't get, and now I don't know how to approach my endo's office -- is this the wrong vial of medication, or am I missing a vital part of my emergency equipment?

Relatedly, if this IS correct, how in the fuck am I supposed to reconstitute hydrocortisone while having an adrenal crisis? I mean, I have caregivers but only one of them is approved to give injections, the others can't mess with my meds at all, and I'm really worried that I'm gonna get "stuck" trying to make the powder into a liquid and crash while waiting for EMS to show up.

Any help on these questions is appreciated! thank you so much for all the help all y'all provide!