r/medical_advice • u/stockergirlndmanhelp • 8h ago
Other Medical Mystery Help!
Female, Age 24, 5’3, 84lb, non smoker, not currently on meds.
I’ve been seen so many doctors and specialists over the years it’s not even funny. It feels like i’m going nuts and they don’t believe there’s anything wrong with me, yet another one of my finger tips started going numb today so I thought screw it time to crowd source and see if anyone has some ideas!
Current symptoms include:
-Tremors and body shakes, hands are the worse cant flex my right hand without inducing a violent tremor
-Severe muscle guarding in neck
-Chronic fatigue and brain fog
-Joint pain constantly
-Extremely difficult to wake up in the mornings(takes my bf like 15+ minutes to shake me awake and i sleep through at least 4 alarms on weekdays)
-rapid heart rate
-Migraines, sometimes with facial numbness
-Numbness/tingling in fingers and toes
-Coordination issues/clumsiness, legit have not been able to walk in a straight line in years
-Poor depth perception to the point where i run into things and knock cups or other items when reaching for them often
-Pads of feet have little to no feeling
-Hair loss, major lost about a third of my hair in the last year
-Chronic neck tightness/muscle guarding
-Weight stays around 82-86lbs despite trying to gain
-Loose stools and mucus in stool
-Frequent urination (often hourly)
-Urinary urgency and occasional leakage if I hold it too long
-Leg swelling/indentations from clothing or socks, lasting hours
-Bleeding gums/poor gum health
-Enlarged groin lymph nodes that have been present for months and fluctuate in size but never fully disappear
-Irregular menstrual bleeding since my January hospitalization
Medical history
Hospitalized in January for severe menstrual bleeding and almost needed a transfusion
Hospitalized last year for randomly passing out in my kitchen
Went into AFIB randomly when I was 21 and was hospitalized
Pelvic Congestion Syndrome
Nutcracker Syndrome
ADHD
Tachycardia/arrhythmia
Hypoglycemia
History of kidney stones(passed 2x)
Went gluten-free in May and had an improvement in energy, brain fog, sleep, neurological, and GI symptoms for the first couple months, but many symptoms have gradually returned despite staying gluten-free.
I’m adopted so I don’t know my family medical history
Most recent set of labs from new pcp:
TSH 1.090 uIU/mL
T4, Free(Direct) 1.56 no/dl
WBC 9.6 10*3/uL
RBC 5.26 10*6/uL
Hemoglobin 14.3 g/dL
Hematocrit 44.3%
MCV 84 fL
MCH 27.2 pg
MCHC 32.3 g/dL
RDW 12.9%
Platelets 373 10*3/uL
Neutrophils Absolute 6.4 10*3/uL
Lymphs Absolute 2.3 10*3/uL
Monocytes Absolute 0.7 10*3/uL
EOS Absolute 0.2 10*3/uL
BASO Absolute 0.1 10*3/uL
Immature Granulocytes Absolute 0 10*3/uL
Glucose 87 mg/dL
BUN 11 mg/dL
Creatinine 0.73 mg/dL
eGFR 118 mL/min/1.73m2
BUN/Creatinine Ratio 15
Sodium 139 mmol/L
Potassium 4.6 mmol/L
Chloride 100 mmol/L
Carbon Dioxide Total 21 mmol/L
Calcium 10.1 mg/dL
Protein Total 7.9 g/dL
Albumin 4.8 g/dL
Globulin Total 3.1 g/dL
Bilirubin Total 0.9 mg/dL
Alkaline Phosphatase 49 IU/L
AST(SGOT) 21 IU/L
ALT(SGPT) 14 IU/L
TIBC 398 guys/dL
UIBC 334 ug/dL
Iron 64 ug/dL
Iron saturation 16%
B12 798 pg/mL
Folate(Folic Acid) Serum >20 ng/mL
Hemoglobin A1c 5.0%
Vitamin D 25-Hydroxy 34.5 ng/mL
C-Reactive Protein, Cardiac 5.94 mg/L
Anti-CCP AB, IgG/IgA 5 units
ESR 12 mm/hr
Ferritin 56 ng/mL
ANA by IFA Rfx Titer/Pattern negative
from may this year:
iron saturation 9%
iron total 19
hemoglobin and hematocrit low end and history of blood work showing significant lows going back 4 years, as low as 10.4, averaging 12.5 or under
vitamin d 29
mcv 83.5
iron total 32
prealbumin 19
EMA-iga negative
intrinsic factor blocking negative
imaging:
no bowel thickening severe inflammation or narrowing on recent CT in January
enlarged appendix from CT this month
let me know if you’d like to know about other tests! i can look to see if i had them done.
thank you all in advance!
